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Read more about the article TMA: the Need for a Multidisciplinary Team Approach

TMA: the Need for a Multidisciplinary Team Approach

  • Post author:Linda Burke
  • Post published:November 5, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…

Continue ReadingTMA: the Need for a Multidisciplinary Team Approach
Read more about the article Living with aHUS- what would you say?

Living with aHUS- what would you say?

  • Post author:Len Woodward
  • Post published:October 29, 2021
  • Post category:Featured
  • Post comments:0 Comments

If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…

Continue ReadingLiving with aHUS- what would you say?
Read more about the article Atypical HUS Research: What’s New OCT 2021

Atypical HUS Research: What’s New OCT 2021

  • Post author:ahusalliance
  • Post published:October 28, 2021
  • Post category:News
  • Post comments:0 Comments

We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from…

Continue ReadingAtypical HUS Research: What’s New OCT 2021
Read more about the article Good complement goes aHUS bad

Good complement goes aHUS bad

  • Post author:ahusalliance
  • Post published:October 20, 2021
  • Post category:Featured
  • Post comments:0 Comments

  OK, so HUS is caused by e.coli toxins and aHUS results from Complement dysregulation. Both are thrombotic microangiopathies. HUS is…

Continue ReadingGood complement goes aHUS bad
Read more about the article Ravulizumab -Superwoman juice?

Ravulizumab -Superwoman juice?

  • Post author:Len Woodward
  • Post published:October 18, 2021
  • Post category:News
  • Post comments:0 Comments

The portrayal of rare diseases in the media can be both positive and detrimental. It can be sensational and political. It…

Continue ReadingRavulizumab -Superwoman juice?
Read more about the article Bergamo aHUS symposium gets the go ahead

Bergamo aHUS symposium gets the go ahead

  • Post author:Len Woodward
  • Post published:October 12, 2021
  • Post category:News
  • Post comments:0 Comments

In the weeks leading up to aHUS awareness day an announcement was made which did not get the attention it perhaps…

Continue ReadingBergamo aHUS symposium gets the go ahead
Read more about the article Ravulizumab is not quite eculizumab

Ravulizumab is not quite eculizumab

  • Post author:Len Woodward
  • Post published:October 11, 2021
  • Post category:Featured
  • Post comments:0 Comments

Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…

Continue ReadingRavulizumab is not quite eculizumab
Read more about the article Ecu to ravu transfer UPDATE

Ecu to ravu transfer UPDATE

  • Post author:Len Woodward
  • Post published:October 6, 2021
  • Post category:News
  • Post comments:0 Comments

Update news on switching process. aHUS alliance Global Action were not aware of a prior step in the switching process to…

Continue ReadingEcu to ravu transfer UPDATE
Read more about the article Call to action USA aHUS Patients

Call to action USA aHUS Patients

  • Post author:Len Woodward
  • Post published:October 5, 2021
  • Post category:Featured
  • Post comments:0 Comments

In Article 462 notice was given of a study to help USA rare disease patients in general. and aHUS patients in…

Continue ReadingCall to action USA aHUS Patients
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