aHUS Fatigue it matters to aHUS patients
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
aHUS is a disease in which oxygen carrying red blood cells are destroyed along with the kidneys too. The latter plays…
More about the Reluctant Advocate. The alliance had agreed to have the First aHUS Awareness Day on 24th September 2015. The…
The third aHUS alliance affiliates meeting was held on 28 June 2015 , the day after the second UK aHUS…
The journey of the Reluctant Advocate moves along in 2015. Just after the Paris meeting of the alliance I was contacted…
Along with the simple messages "you are not alone" and "we can find a way" on Rare Disease Day 2019 The Global aHUS…
Another chapter from the Reluctant Advocate From its beginning aHUSUK had not been a fundraiser. We had always told people who…
A big step in the Reluctant Advocate's journey. As previously pointed out aHUSUK outreach was extending due in the main to…
More from the reluctant advocate. The July meeting of NICE left us worried. The meeting had been held on 23rd July…
Another pathway for the reluctant advocate. All aHUS Patients and their families have had their own aHUS experience. When it hit…