Thrombomodulin and TMA- complement inhibition or not?
It is said that thrombomodulin, or TM(AKA THBD) or CD141 plays only an indirect part in TMA ( thrombotic microangiopathy) .…
More is known about Epysqli these days
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
Health economics and stopping eculizumab treatment safely
A second article in a series of four planned has just been published. It is about the health economics of treatment…
aHUS is an autoimmune disease?
So aHUS is an autoimmune disease? Well actually not but depending on the definition of aHUS there can be an autoimmune…
Welcoming another country to the “Global aHUS Town”
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
Fairy Tale on the island of Camp-le-mont
Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…
Stopping aHUS Treatment Safely
It is over a decade ago now but I still recall vividly when, at the first meeting of what would become…
Friendly Fire in aHUS
In the battlefield of the human body, atypical hemolytic uremic syndrome (aHUS) is a stark example of "friendly fire"—a term borrowed…
Global aHUS Neighbours – Nepal moves in to aHUS Town.
Visitors to the aHUS alliance Global Action website may have observed a new feature on our home page. Yes a world…
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