To vaccinate or not to vaccinate with aHUS
I am not going to have a vaccination. Fair enough vaccinations are not mandatory but why? aHUS Oh you have aHUS.…
Answering and questioning the KDIGO aHUS Questions ( Part 1)
KDIGO met again to progress, through controversial means, knowledge of aHUS, or what ever it is called these days. There were…
An ill person happens to “walk” into a Hospital and is having an onset of aHUS…
For a person experiencing aHUS (atypical hemolytic uremic syndrome / C-TMA/cTMA) onset who arrives at a hospital, acute stabilization (often with…
Managing Anti-Complement factor H Auto Antibodies version of aHUS
aHUS patients are well aware of Anti-Complement Factor H Auto Antibodies can cause aHUS. I have heard them called Anti factor…
Serious Infections- aHUS patients are their own early warning system
An article appeared last month about practical things that need to be done to limit the risk for complement inhibitor users,…
Meningitis outbreak and living with aHUS
A meningitis outbreak should be of particular concern to those living with aHUS. A recent outbreak in the UK was described…
Trial Watch 22 – Iptacopan and Crovalimab for aHUS
Not much heard about these trials these days and when they will conclude and move to the approval stage. The aHUS…
Are some “new” ravulizumab adverse events a worry for aHUS patients?
Side effects from ravulizumab treatment can be a worry. They are listed in the patient leaflet that comes with every vial…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
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