RDD25: MORE THAN YOU CAN IMAGINE!
Thank You to all Participants! View the completed Rare Disease Day 2024 project here http://bit.ly/RDday2025aHUS The background to the video is…
Is a patient organisation still needed for aHUS?
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
It’s ChristmaHUS
Try the ChristmaHUS Quiz and when you finish join in with the aHUS Christmas Carol. Here’s a 20-question multiple-choice quiz on…
Treatment Discontinuation- do doctors and patients think alike?
Recently a novel article about complement inhibitor treatment discontinuation was published. Novel because of the research method used to produce its…
aHUS etc dip into ASH 2024
Some of the latest aHUS, CM-TMA and TMA research being displayed at the American Society of Haematologists , ASH, conference 2024…
COMPLOSOME : SOMETHING ”NEW” ABOUT COMPLEMENT
Hi GA (Global Action) tell me something new about complement. Hi again. The Complosome. The “COM PLO SOAM” what is that?…
700 facts about aHUS?
This is the 700 th blog article about aHUS on this website. When thinking about how to mark this milestone a…
Numbers of aHUS patients
The aHUS patient community asked in its research agenda what are the numbers of aHUS patients. Global Action has written about…
Mental health aHUS Day video- insights
The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it…