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Author: Len Woodward

This author has written 218 articles
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  2. Len Woodward>
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Read more about the article Variants of uncertain significance (VUS) for aHUS

Variants of uncertain significance (VUS) for aHUS

  • Post author:Len Woodward
  • Post published:March 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…

Continue ReadingVariants of uncertain significance (VUS) for aHUS
Read more about the article Poems for aHUS,

Poems for aHUS,

  • Post author:Len Woodward
  • Post published:March 5, 2024
  • Post category:Uncategorized
  • Post comments:0 Comments

While sorting out some papers recently I came across a poem an aHUS patient sent me about living with dialysis. This…

Continue ReadingPoems for aHUS,
Read more about the article What  the RDD24 aHUS video tells us.

What the RDD24 aHUS video tells us.

  • Post author:Len Woodward
  • Post published:March 4, 2024
  • Post category:News
  • Post comments:0 Comments

The Steven Spielberg of aHUS videos (Jeff) has produce another aHUS video for RDD24. Sixty six aHUS patients /carers starred in…

Continue ReadingWhat the RDD24 aHUS video tells us.
Read more about the article Medication Guide Eculizumab

Medication Guide Eculizumab

  • Post author:Len Woodward
  • Post published:February 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial…

Continue ReadingMedication Guide Eculizumab
Read more about the article Review of the research that matters to aHUS patients (Part 2)

Review of the research that matters to aHUS patients (Part 2)

  • Post author:Len Woodward
  • Post published:February 12, 2024
  • Post category:Featured
  • Post comments:0 Comments

When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…

Continue ReadingReview of the research that matters to aHUS patients (Part 2)
Read more about the article Review of the aHUS patient research agenda (Part 1)

Review of the aHUS patient research agenda (Part 1)

  • Post author:Len Woodward
  • Post published:February 7, 2024
  • Post category:Featured
  • Post comments:0 Comments

During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…

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Read more about the article Dr Leonard Bell – Before aHUS Endeavours Fade

Dr Leonard Bell – Before aHUS Endeavours Fade

  • Post author:Len Woodward
  • Post published:February 5, 2024
  • Post category:News
  • Post comments:0 Comments

Those new to the disease aHUS may not know the significant contribution that Dr Leonard Bell has made to their treatment…

Continue ReadingDr Leonard Bell – Before aHUS Endeavours Fade
Read more about the article Epidemiology – aHUS Agenda Topic 15-

Epidemiology – aHUS Agenda Topic 15-

  • Post author:Len Woodward
  • Post published:January 31, 2024
  • Post category:News
  • Post comments:0 Comments

aHUS epidemiology is the about how many aHUS patients there are. The numbers onsetting and surviving. It’s “Incidence” and “prevalence”. How…

Continue ReadingEpidemiology – aHUS Agenda Topic 15-
Read more about the article Family Planning- aHUS Agenda Topic 14

Family Planning- aHUS Agenda Topic 14

  • Post author:Len Woodward
  • Post published:January 29, 2024
  • Post category:Featured
  • Post comments:0 Comments

Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…

Continue ReadingFamily Planning- aHUS Agenda Topic 14
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