What’s New in aHUS Research – Dec 2025 Edition
Keeping track of medical advancements in the rare disease space is challenging, but for those interested in atypical HUS the aHUS…
From aHUS Ashes: Rise of the Phoenix
Three journeys - among so many - lives transformed by one of the world's rarest diseases When atypical Hemolytic Uremic Syndrome…
Hope Emerges for aHUS Patients in India
Hope Emerges for India's aHUS Patients After Years of Struggle After years of waiting in the shadows of India's healthcare system,…
aHUS Alliance Global Action – Partners in Advocacy
How Global aHUS Advocacy Strengthens Support for Patients, Families, and the Medical Community in Nations around the World Around the world,…
Groundbreaking: USA News about Novartis, Roche & AstraZeneca
Some in the USA rare disease community were wondering how this scenario would unfold - now we know. Well, at least…
Finding new neighbours- Global aHUS Town
The search for more known neighbours in Global aHUS Town began this summer. At the start there were 59 countries where…
Decision making in aHUS Health Recovery
The annual aHUS Awareness Day video ( see HERE) had a theme of best decision making in the recovery from an…
Withdrawing from treatment- patients’ perception
What is it like from an aHUS patients' perspective to decide to withdraw from complement inhibitor treatment? Much is published about…
Idiopathic aHUS- so what ?
Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause…
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