Characteristics of aHUS patients
Although sparse, getting characteristics information about aHUS patients can come from a variety of sources. A recent article in The Lancet*…
Although sparse, getting characteristics information about aHUS patients can come from a variety of sources. A recent article in The Lancet*…
Who are Alois Alzheimer, Cecil Alport, Burrill Crohn, Guillaume Duchenne, James Parkinson and Graham Hughes and what do they have in…
The aHUS endeavours series continue with an interview with Bill and Cheryl Biermann whose family was affected by aHUS at the…
You know how when a group forms and they create ideas of what the group can do together - they have…
Last year Global Action brought attention to a research article ( Closing the CaHUS knowledge gap ) which stood out as…
If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…
Atypical HUS - research updates for Feb 2024
Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial…
When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…