aHUS uncertainty is certain
What is certain is that aHUS patients vary. Like many health conditions there are considerable differences between aHUS patients in terms…
EURenOmics explained
A European rare kidney disease consortium is working on diagnostic tools and treatments for rare kidney diseases like aHUS. The initiative…
Affordable Care makes sense everywhere
Access to heath care and treatment is a global concern for all those with chronic, life threatening heath conditions; probably even…
Before or after , with or without- transplant decisions need data
Anyone, who has been involved in aHUS patient advocacy for some time, will be aware of the special place that those…
Life and legacy bonds for all with aHUS
In the reception area of Alexion's HQ in New Haven Connecticut there is a piece of conceptual art. ( see the…
Research & Education: Keys to aHUS Answers
Especially with very rare diseases such as atypical HUS, medical research and education efforts are keys to unlocking information that’s critical…
Be the clinician and diagnose aHUS
The previous blog illustrates the difficulty of diagnosing aHUS. From the basic information about some patients have a go at diagnosing…
Is it aHUS? Perhaps it’s TTP, STEC-HUS, or Another TMA
Feeling sick is difficult enough without going to a doctor’s appointment and learning that the diagnosis might possibly be the…
Challenge of Secondary aHUS diagnosis
A question ,which featured in the Rare Diseases Day video, will have resonated with many aHUS families as it was about…
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