Withdrawing from treatment- patients’ perception
What is it like from an aHUS patients' perspective to decide to withdraw from complement inhibitor treatment? Much is published about…
Idiopathic aHUS- so what ?
Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause…
Discriminatory rare disease reach on social media platforms
Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…
More countries becoming neighbours in Global aHUS Town
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
Thrombomodulin and TMA- complement inhibition or not?
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…
More is known about Epysqli these days
The drug Epysqli or the version of eculizumab known as eculizumab-aagh has been available in some countries since 2024 . Although…
aHUS is an autoimmune disease?
So aHUS is an autoimmune disease? Well actually not but depending on the definition of aHUS there can be an autoimmune…
aHUS Awareness Day
Renaming aHUS – What’s Your Vote? Watch the project video & share its link: https://bit.ly/aHUSday2026video Article about the 2026 aHUS Day…
Fairy Tale on the island of Camp-le-mont
Once upon a time, far away in the middle of a sparkling sea, there was a magical island called Camp-le-mont. Some…
- Go to the previous page
- 1
- …
- 4
- 5
- 6
- 7
- 8
- 9
- 10
- …
- 60
- Go to the next page