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Read more about the article Atypical HUS Facts: 2024 – Sept – 2025

Atypical HUS Facts: 2024 – Sept – 2025

  • Post author:Linda Burke
  • Post published:September 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

2024 – SEPT – 2025  Atypical HUS: Fact Sheets & Research Atypical Hemolytic Uremic Syndrome – a Rare Disease   Information…

Continue ReadingAtypical HUS Facts: 2024 – Sept – 2025
Read more about the article Social media and aHUS- Before aHUS endeavours fade

Social media and aHUS- Before aHUS endeavours fade

  • Post author:Len Woodward
  • Post published:September 6, 2024
  • Post category:Featured
  • Post comments:0 Comments

aHUS in the social media is now much more commonplace. In this latest article in the series “Before aHUS Endeavours Fade”…

Continue ReadingSocial media and aHUS- Before aHUS endeavours fade
Read more about the article Trial Watch 20- ClinicalTrials.eu

Trial Watch 20- ClinicalTrials.eu

  • Post author:Len Woodward
  • Post published:September 2, 2024
  • Post category:Featured
  • Post comments:0 Comments

The Global Action series “Trial Watch” has in the past covered several trials of treatments for aHUS patients and even some…

Continue ReadingTrial Watch 20- ClinicalTrials.eu
Read more about the article aHUS awareness day and aHUS alliance Global Action

aHUS awareness day and aHUS alliance Global Action

  • Post author:Len Woodward
  • Post published:August 21, 2024
  • Post category:Featured
  • Post comments:0 Comments

Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…

Continue ReadingaHUS awareness day and aHUS alliance Global Action
Read more about the article aHUS Newsletter: Have you Seen our July 2024 Edition?

aHUS Newsletter: Have you Seen our July 2024 Edition?

  • Post author:Linda Burke
  • Post published:August 2, 2024
  • Post category:Featured
  • Post comments:0 Comments

Where can you get aHUS news that’s independent, objective, and focused on what’s important to the atypical HUS community?  Here! We’re…

Continue ReadingaHUS Newsletter: Have you Seen our July 2024 Edition?
Read more about the article 2024 aHUS Awareness Day: Theme for the aHUS 24 Sept Campaign

2024 aHUS Awareness Day: Theme for the aHUS 24 Sept Campaign

  • Post author:Linda Burke
  • Post published:July 29, 2024
  • Post category:Featured
  • Post comments:0 Comments

The theme for aHUS Awareness Day 2024 is 'Mental Health'

Continue Reading2024 aHUS Awareness Day: Theme for the aHUS 24 Sept Campaign
Read more about the article AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Without any further comment here is the model mentioned in the previous article ( which if you have not already seen…

Continue ReadingAN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL
Read more about the article TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

TO STOP OR NOT TO STOP – THAT IS THE QUESTION?

  • Post author:Len Woodward
  • Post published:July 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a…

Continue ReadingTO STOP OR NOT TO STOP – THAT IS THE QUESTION?
Read more about the article 2024 Global aHUS Poll Launches

2024 Global aHUS Poll Launches

  • Post author:Linda Burke
  • Post published:July 8, 2024
  • Post category:Featured/Uncategorized
  • Post comments:1 Comment

2024 survey launched to explore atypical HUS patient experiences around the world.

Continue Reading2024 Global aHUS Poll Launches
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