aHUS in poetic verse. #3
For the third in this series of aHUS in different genres we sought poetic verse in the style of Shakespeare, Keats…
aHUS in modern music genre. #2
Continuing the theme of aHUS in verse we looked at different music genre and asked for RAP , Country , Blues…
aHUS’ “Beacon in the night” – #1
Last Christmas we published an AI carol about aHUS. For some “light” insights into the disease we have used AI once…
Vision for a 2024 aHUS Global Poll
A poll for the int'l atypical HUS community will launch in 2024, what does advocates envision for key info & comparisons?
Atypical HUS & Soft Tissue Examination?
As scientific discoveries advance, knowledge gaps slowly get smaller as well. This is true for any medical condition, but especially important…
aHUS as a rare disease 10 years ago
10 years ago global information about aHUS patients was more or less non existent. Vey sparse at best. An aHUS alliance…
Is it OK to spend $2 billion plus on aHUS patients?
OK. Imagine yourself as an aHUS patient and advocate for other aHUS patients in your country and you have been asked…
Ambitions for Rare Diseases are aHUS ambitions too
Below is a “framework of ambitions” for those with rare diseases which appeared on Rare Disease Day 2024 (see link below…
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