Raising Global aHUS Awareness Everywhere
Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…
Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…
It is said that thrombomodulin, or TM (AKA THBD) ,or CD141, plays only an indirect part in TMA (thrombotic microangiopathy) .…
A second article in a series of four planned has just been published. It is about the health economics of treatment…
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
It is over a decade ago now but I still recall vividly when, at the first meeting of what would become…
India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…
Frequently these days people talk about their "journey". I have known of the journey of an aHUS patient in India for…
For the past nine years Global Action has been at the forefront of featuring the aHUS name change journey. Currently proposals…
Last Summer nearly three hundred aHUS people from around the world participated in the 2024 Global Poll. They filled in a…