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Read more about the article India had its first aHUS patient conference- what next

India had its first aHUS patient conference- what next

  • Post author:Len Woodward
  • Post published:July 3, 2025
  • Post category:Featured/News
  • Post comments:0 Comments

India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…

Continue ReadingIndia had its first aHUS patient conference- what next
Read more about the article Is this the beginning of the end of an aHUS journey in India?

Is this the beginning of the end of an aHUS journey in India?

  • Post author:Len Woodward
  • Post published:June 28, 2025
  • Post category:News
  • Post comments:0 Comments

Frequently these days people talk about their "journey". I have known of the journey of an aHUS patient in India for…

Continue ReadingIs this the beginning of the end of an aHUS journey in India?
Read more about the article A patients perspective  of aHUS name change

A patients perspective of aHUS name change

  • Post author:Len Woodward
  • Post published:April 18, 2025
  • Post category:News
  • Post comments:0 Comments

For the past nine years Global Action has been at the forefront of featuring the aHUS name change journey. Currently proposals…

Continue ReadingA patients perspective of aHUS name change
Read more about the article Global Poll for aHUS – Progress Report

Global Poll for aHUS – Progress Report

  • Post author:Len Woodward
  • Post published:April 13, 2025
  • Post category:News
  • Post comments:0 Comments

Last Summer nearly three hundred aHUS people from around the world participated in the 2024 Global Poll. They filled in a…

Continue ReadingGlobal Poll for aHUS – Progress Report
Read more about the article Real world data on aHUS treatment discontinuation

Real world data on aHUS treatment discontinuation

  • Post author:Len Woodward
  • Post published:April 7, 2025
  • Post category:News
  • Post comments:0 Comments

A few days ago an article appeared in The Lancet which claims to be the largest real world analysis of complement…

Continue ReadingReal world data on aHUS treatment discontinuation
Read more about the article AHUS TRIAL WATCH 21- RAVULIZUMAB AND PREGNANCY

AHUS TRIAL WATCH 21- RAVULIZUMAB AND PREGNANCY

  • Post author:Len Woodward
  • Post published:March 10, 2025
  • Post category:News
  • Post comments:0 Comments

An unusual aHUS trial study ( No.NCT06312644) has begun which involves mothers with aHUS and their babies. The official title of…

Continue ReadingAHUS TRIAL WATCH 21- RAVULIZUMAB AND PREGNANCY
Read more about the article aHUS etc dip into ASH 2024

aHUS etc dip into ASH 2024

  • Post author:Len Woodward
  • Post published:December 5, 2024
  • Post category:News
  • Post comments:0 Comments

Some of the latest aHUS, CM-TMA and TMA research being displayed at the American Society of Haematologists , ASH, conference 2024…

Continue ReadingaHUS etc dip into ASH 2024
Read more about the article Change of name for aHUS news

Change of name for aHUS news

  • Post author:Len Woodward
  • Post published:November 21, 2024
  • Post category:News
  • Post comments:0 Comments

What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the…

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Read more about the article The 2024 Global aHUS Poll

The 2024 Global aHUS Poll

  • Post author:Len Woodward
  • Post published:September 10, 2024
  • Post category:News
  • Post comments:0 Comments

The 2024 Global aHUS Poll was closed to further responses on 18th July. It had been open for 6 weeks and…

Continue ReadingThe 2024 Global aHUS Poll
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