Atypical HUS Research: NOV 2022 New Additions
There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the…
aHUS Drug Candidates – the 2022 Landscape
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new…
Topics in aHUS Research – Sept 2022
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…
aHUS Day 2022: Awareness Through Togetherness
The 8th international aHUS Awareness Day will occur on 24 September 2022, with this year’s theme as ‘Awareness through Togetherness’. We’re…
aHUS Project for 2022 Rare Disease Day
Rare Disease Day 2022: aHUS Alliance Global Action to mark the day with a patient-centered video that focuses on questions posed by those affected by the rare disease atypical HUS.
Small Molecule Factor D Inhibitors – Right for aHUS?
Out of more than 7000 rare diseases, only an estimated 5% have an approved treatment or therapy (Rare Disease Day, FAQs).…