4 Myths of Rare Disease Advocacy: Part 2
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there…
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there…
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…
International Nephrology Conference in BUCHAREST, Romania 17 & 18 Nov 2017 In the 1st conference of this type…
Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)? You’ve found…
Among rare kidney diseases, there are common clinical and patient issues. Meeting at the KDIGO Controversies Conference Common Elements in…
The aHUS alliance has put out its aHUS Awareness Day video for 2017. 72 patients, or family members, from 18…
We welcome the aHUS community in Poland as the newest of aHUS patient organizations uniting with other nations under…
It is just 25 days to aHUS Awareness Day 2017 and patients and patients' organsations around the world will be making…
The 3rd international aHUS Awareness Day is just 2 months away. The world will join together on…