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Read more about the article 4 Myths of Rare Disease Advocacy:  Part 2

4 Myths of Rare Disease Advocacy: Part 2

  • Post author:ahusalliance
  • Post published:December 26, 2017
  • Post category:Featured
  • Post comments:0 Comments

    The SECOND Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions   Although there…

Continue Reading4 Myths of Rare Disease Advocacy: Part 2
Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
Read more about the article Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG

  • Post author:ahusalliance
  • Post published:October 18, 2017
  • Post category:Featured
  • Post comments:0 Comments

International Nephrology Conference in BUCHAREST, Romania       17 & 18 Nov 2017     In the 1st conference of this type…

Continue ReadingBucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
Read more about the article Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

  • Post author:ahusalliance
  • Post published:October 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)?  You’ve found…

Continue ReadingAtypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Read more about the article aHUS & C3G:  KDIGO Physician Reference Guide (Oct 2017)

aHUS & C3G: KDIGO Physician Reference Guide (Oct 2017)

  • Post author:ahusalliance
  • Post published:October 3, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Among rare kidney diseases, there are common clinical and patient issues. Meeting at the KDIGO Controversies Conference Common Elements in…

Continue ReadingaHUS & C3G: KDIGO Physician Reference Guide (Oct 2017)
Read more about the article aHUS Day video- Thoughts for Doctors

aHUS Day video- Thoughts for Doctors

  • Post author:ahusalliance
  • Post published:September 24, 2017
  • Post category:Featured
  • Post comments:0 Comments

  The aHUS alliance has put out its aHUS Awareness Day video for 2017. 72 patients, or family members, from 18…

Continue ReadingaHUS Day video- Thoughts for Doctors
Read more about the article aHUS in Poland – United in Advocacy

aHUS in Poland – United in Advocacy

  • Post author:ahusalliance
  • Post published:September 7, 2017
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

    We welcome the aHUS community in Poland as the newest of aHUS patient organizations uniting with other nations under…

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Read more about the article aHUS and the Red Balloon

aHUS and the Red Balloon

  • Post author:ahusalliance
  • Post published:August 31, 2017
  • Post category:Featured
  • Post comments:0 Comments

It is just 25 days to aHUS Awareness Day 2017 and patients and patients' organsations around the world will be making…

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Read more about the article aHUS Awareness Day 2017 – Global Video Project

aHUS Awareness Day 2017 – Global Video Project

  • Post author:ahusalliance
  • Post published:July 24, 2017
  • Post category:Uncategorized
  • Post comments:0 Comments

        The 3rd international aHUS Awareness Day is just 2 months away. The world will join together on…

Continue ReadingaHUS Awareness Day 2017 – Global Video Project
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