Does the aHUS alliance add value?
Adding value in patient advocacy is obvious. Or is it? Those involved in patient advocacy constantly ask themselves “Am I achieving…
4 Myths of Rare Disease Advocacy: Part 2
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there…
Atypical HUS – Rare Disease Day 2018
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…
Bucharest – Nephrology Course, Nov 17-18: IPNA & SEPNWG
International Nephrology Conference in BUCHAREST, Romania 17 & 18 Nov 2017 In the 1st conference of this type…
Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)? You’ve found…
aHUS & C3G: KDIGO Physician Reference Guide (Oct 2017)
Among rare kidney diseases, there are common clinical and patient issues. Meeting at the KDIGO Controversies Conference Common Elements in…
aHUS Day video- Thoughts for Doctors
The aHUS alliance has put out its aHUS Awareness Day video for 2017. 72 patients, or family members, from 18…
aHUS in Poland – United in Advocacy
We welcome the aHUS community in Poland as the newest of aHUS patient organizations uniting with other nations under…
aHUS and the Red Balloon
It is just 25 days to aHUS Awareness Day 2017 and patients and patients' organsations around the world will be making…