aHUS as a rare disease 10 years ago
10 years ago global information about aHUS patients was more or less non existent. Vey sparse at best. An aHUS alliance…
Review of the aHUS patient research agenda (Part 1)
During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…
Algorithms: Steps to Diagnose aHUS & other TMAs
Algorithms to diagnose aHUS apart from other syndromes of TMA exist, but why do these tools with problem solving steps seem under-utilized?
Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”
It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…
aHUS Diagnosis Process – Report 2
The second article in the series about the aHUS Diagnosis Process has been published on the website today. Research made possible…
Update: aHUS Diagnosis Process Study
Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…
aHUS Diagnosis Process tremendous response
Article No 412 21 January 2021 The 19th January 2021 has passed and the aHUS Diagnosis Process Study Questionnaire has now…
The aHUS Diagnosis Process
Article No 389 27 October 2020 A process is a series of steps. Diagnosis is a process. A medical diagnosis is…
The aHUS diagnosis challenge
Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a…