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Read more about the article KDIGO and aHUS treatment guidelines

KDIGO and aHUS treatment guidelines

  • Post author:Len Woodward
  • Post published:November 14, 2023
  • Post category:Featured
  • Post comments:2 Comments

KDIGO stands for Kidney Disease: Improving Global Outcomes. It is a global nonprofit organization that develops and publishes clinical practice guidelines…

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Read more about the article aHUS – Stopping eculizumab treatment safely

aHUS – Stopping eculizumab treatment safely

  • Post author:Len Woodward
  • Post published:November 1, 2023
  • Post category:News
  • Post comments:0 Comments

For aHUS patients stopping eculizumab (or even Ravulizumab) treatment is an important but emotive issue. Having had the treatment when seriously…

Continue ReadingaHUS – Stopping eculizumab treatment safely
Read more about the article Closing the CaHUS knowledge gap

Closing the CaHUS knowledge gap

  • Post author:Len Woodward
  • Post published:October 21, 2023
  • Post category:News
  • Post comments:0 Comments

Two days ago an article appeared in BLOOD journal which was the result of a comprehensive analysis of data about patients…

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Read more about the article Immunocompromisation- is it aHUS?

Immunocompromisation- is it aHUS?

  • Post author:Len Woodward
  • Post published:October 20, 2023
  • Post category:News
  • Post comments:0 Comments

Immunocompromisation is a hall mark of aHUS. For those who are predisposed to it and for those who have had it…

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Read more about the article Complement inhibitor users it’s World Meningitis Day

Complement inhibitor users it’s World Meningitis Day

  • Post author:Len Woodward
  • Post published:October 5, 2023
  • Post category:News
  • Post comments:0 Comments

It is important that those using complement inhibitors remain alert to meningococcal infection a life threatening side effect of their use.…

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Read more about the article What are aHUS people capable of?

What are aHUS people capable of?

  • Post author:Len Woodward
  • Post published:September 26, 2023
  • Post category:News
  • Post comments:0 Comments

About 4000 people around the world have had aHUS since the last aHUS awareness day. Many did not survive, they were…

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Read more about the article Just saying it’s aHUS Awareness Day 2023

Just saying it’s aHUS Awareness Day 2023

  • Post author:Len Woodward
  • Post published:September 24, 2023
  • Post category:News
  • Post comments:0 Comments

Yes today 24th September 2023 is another aHUS awareness day, the 9th to date. Ever wonder who is behind this international…

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Read more about the article The early days of aHUS Research (Before aHUS Endeavours Fade)

The early days of aHUS Research (Before aHUS Endeavours Fade)

  • Post author:Len Woodward
  • Post published:September 11, 2023
  • Post category:Featured
  • Post comments:0 Comments

Global Action is privileged to present a second article in the series BEFORE aHUS ENDEAVOURS FADE. Celebrating the work of people…

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Read more about the article Numbers about aHUS

Numbers about aHUS

  • Post author:Len Woodward
  • Post published:September 5, 2023
  • Post category:Featured
  • Post comments:0 Comments

The first thing about aHUS numbers is that there is no exact record of global aHUS patients anywhere . But research…

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