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Read more about the article Characteristics of aHUS patients

Characteristics of aHUS patients

  • Post author:Len Woodward
  • Post published:April 4, 2024
  • Post category:Featured
  • Post comments:0 Comments

Although sparse, getting characteristics information about aHUS patients can come from a variety of sources. A recent article in The Lancet*…

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Read more about the article Who to call aHUS -D59.32 or D59.39?

Who to call aHUS -D59.32 or D59.39?

  • Post author:Len Woodward
  • Post published:April 1, 2024
  • Post category:Featured
  • Post comments:0 Comments

Who are Alois Alzheimer, Cecil Alport, Burrill Crohn, Guillaume Duchenne, James Parkinson and Graham Hughes and what do they have in…

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Read more about the article Bill and Cheryl Biermann -Before aHUS Endeavours Fade

Bill and Cheryl Biermann -Before aHUS Endeavours Fade

  • Post author:Len Woodward
  • Post published:March 25, 2024
  • Post category:Featured
  • Post comments:0 Comments

The aHUS endeavours series continue with an interview with Bill and Cheryl Biermann whose family was affected by aHUS at the…

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Read more about the article Aspirations for aHUS- a to do list.

Aspirations for aHUS- a to do list.

  • Post author:Len Woodward
  • Post published:March 20, 2024
  • Post category:Featured
  • Post comments:0 Comments

You know how when a group forms and they create ideas of what the group can do together - they have…

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Read more about the article Research into aHUS – an interview with a researcher

Research into aHUS – an interview with a researcher

  • Post author:Len Woodward
  • Post published:March 18, 2024
  • Post category:Featured
  • Post comments:0 Comments

Last year Global Action brought attention to a research article ( Closing the CaHUS knowledge gap ) which stood out as…

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Read more about the article World Kidney Day  2024 – a webinar

World Kidney Day 2024 – a webinar

  • Post author:Len Woodward
  • Post published:March 14, 2024
  • Post category:News
  • Post comments:0 Comments

Today is World Kidney Day. An annual awareness day to bring kidney disease matters to the world’s attention. aHUS is a…

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Read more about the article Variants of uncertain significance (VUS) for aHUS

Variants of uncertain significance (VUS) for aHUS

  • Post author:Len Woodward
  • Post published:March 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…

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Read more about the article What  the RDD24 aHUS video tells us.

What the RDD24 aHUS video tells us.

  • Post author:Len Woodward
  • Post published:March 4, 2024
  • Post category:News
  • Post comments:0 Comments

The Steven Spielberg of aHUS videos (Jeff) has produce another aHUS video for RDD24. Sixty six aHUS patients /carers starred in…

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Read more about the article Medication Guide Eculizumab

Medication Guide Eculizumab

  • Post author:Len Woodward
  • Post published:February 16, 2024
  • Post category:Featured
  • Post comments:0 Comments

Have you ever seen or read the medication guidance for using Eculizumab, or even Ravulizumab? There is one in every vial…

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