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atypical HUS

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Read more about the article Familial Genetic Testing- aHUS Agenda Topic 2-

Familial Genetic Testing- aHUS Agenda Topic 2-

  • Post author:Len Woodward
  • Post published:November 23, 2023
  • Post category:Featured
  • Post comments:0 Comments

The series about the aHUS Research Agenda continues with second topic about familial genetic testing. When it comes to genetic testing…

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Read more about the article Cause Factors- aHUS Agenda Topic 1

Cause Factors- aHUS Agenda Topic 1

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

"What the heck hit me to cause that and why" are not an unreasonable question for aHUS patients to ask. Collectively…

Continue ReadingCause Factors- aHUS Agenda Topic 1
Read more about the article Is an aHUS patient research agenda worthwhile?

Is an aHUS patient research agenda worthwhile?

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…

Continue ReadingIs an aHUS patient research agenda worthwhile?
Read more about the article Could there be a LONG aHUS like LONG COVID?

Could there be a LONG aHUS like LONG COVID?

  • Post author:Len Woodward
  • Post published:November 17, 2023
  • Post category:Featured
  • Post comments:2 Comments

We asked an expert “ Have you heard about Long COVID? Given the similarities could there be a LONG aHUS?” This…

Continue ReadingCould there be a LONG aHUS like LONG COVID?
Read more about the article KDIGO and aHUS treatment guidelines

KDIGO and aHUS treatment guidelines

  • Post author:Len Woodward
  • Post published:November 14, 2023
  • Post category:Featured
  • Post comments:2 Comments

KDIGO stands for Kidney Disease: Improving Global Outcomes. It is a global nonprofit organization that develops and publishes clinical practice guidelines…

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Read more about the article aHUS – Stopping eculizumab treatment safely

aHUS – Stopping eculizumab treatment safely

  • Post author:Len Woodward
  • Post published:November 1, 2023
  • Post category:News
  • Post comments:0 Comments

For aHUS patients stopping eculizumab (or even Ravulizumab) treatment is an important but emotive issue. Having had the treatment when seriously…

Continue ReadingaHUS – Stopping eculizumab treatment safely
Read more about the article Complement inhibitor users it’s World Meningitis Day

Complement inhibitor users it’s World Meningitis Day

  • Post author:Len Woodward
  • Post published:October 5, 2023
  • Post category:News
  • Post comments:0 Comments

It is important that those using complement inhibitors remain alert to meningococcal infection a life threatening side effect of their use.…

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Read more about the article What are aHUS people capable of?

What are aHUS people capable of?

  • Post author:Len Woodward
  • Post published:September 26, 2023
  • Post category:News
  • Post comments:0 Comments

About 4000 people around the world have had aHUS since the last aHUS awareness day. Many did not survive, they were…

Continue ReadingWhat are aHUS people capable of?
Read more about the article Just saying it’s aHUS Awareness Day 2023

Just saying it’s aHUS Awareness Day 2023

  • Post author:Len Woodward
  • Post published:September 24, 2023
  • Post category:News
  • Post comments:0 Comments

Yes today 24th September 2023 is another aHUS awareness day, the 9th to date. Ever wonder who is behind this international…

Continue ReadingJust saying it’s aHUS Awareness Day 2023
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