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atypical HUS

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Read more about the article The ethics of aHUS treatment trials

The ethics of aHUS treatment trials

  • Post author:Len Woodward
  • Post published:September 15, 2022
  • Post category:Featured
  • Post comments:0 Comments

When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…

Continue ReadingThe ethics of aHUS treatment trials
Read more about the article *Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022

  • Post author:Len Woodward
  • Post published:September 1, 2022
  • Post category:News
  • Post comments:0 Comments

Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…

Continue Reading*Cancelled* Global aHUS “Town Hall” Meetings – Awareness Day 2022
Read more about the article Does this genetic variant cause aHUS- Yes or No?

Does this genetic variant cause aHUS- Yes or No?

  • Post author:Len Woodward
  • Post published:August 22, 2022
  • Post category:Featured
  • Post comments:0 Comments

Are the predisposing genetic and triggering factors of aHUS fully catalogued and understood and will it help to know how variable…

Continue ReadingDoes this genetic variant cause aHUS- Yes or No?
Read more about the article TMAs and aHUS illustrated

TMAs and aHUS illustrated

  • Post author:Len Woodward
  • Post published:July 31, 2022
  • Post category:News
  • Post comments:0 Comments

Here is a most unusual clinical article from earlier this year. In Thrombotic microangiopathies : An Illustrated review the Abou-Ismail Group…

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Read more about the article KDIGO – aHUS controversies and consensus

KDIGO – aHUS controversies and consensus

  • Post author:Len Woodward
  • Post published:July 26, 2022
  • Post category:News
  • Post comments:0 Comments

Six years ago, aHUS featured, along with another renal disease MPGN/C3G, in a controversies conference held by KDIGO (Kidney Disease Improving…

Continue ReadingKDIGO – aHUS controversies and consensus
Read more about the article Trial watch  16 -Factor D complement inhibitor.

Trial watch 16 -Factor D complement inhibitor.

  • Post author:Len Woodward
  • Post published:July 13, 2022
  • Post category:News
  • Post comments:0 Comments

One of the ways to find out which drugs have a potential for aHUS treatment is to look at trials for…

Continue ReadingTrial watch 16 -Factor D complement inhibitor.
Read more about the article A Community Advisory Board for aHUS

A Community Advisory Board for aHUS

  • Post author:Len Woodward
  • Post published:June 12, 2022
  • Post category:News
  • Post comments:0 Comments

Today it can be announced that a Global aHUS Community Advisory Board (CAB) has been formed. What is a Community Advisory…

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Read more about the article An aHUS diagnosis, lucky or what?

An aHUS diagnosis, lucky or what?

  • Post author:Len Woodward
  • Post published:June 10, 2022
  • Post category:News
  • Post comments:0 Comments

It is hard to believe that it will soon be two years since the aHUS Diagnosis Process project began. It began…

Continue ReadingAn aHUS diagnosis, lucky or what?
Read more about the article 3 weeks to aHUS Conference
Panoramic view of vittà alta. Bergamo - Italy

3 weeks to aHUS Conference

  • Post author:Len Woodward
  • Post published:June 1, 2022
  • Post category:News
  • Post comments:0 Comments

The most important conference being held this year to feature aHUS, is the long awaited ISN Complement Mediated Renal Disease meeting…

Continue Reading3 weeks to aHUS Conference
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