Kamal is an aHUS Super Hero
Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…
aHUS are we there yet?
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
Living with aHUS- what would you say?
If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…
Kidney Disease & Dental Health
Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.
COVID-19: Challenges faced by Dialysis Patients
Article No. 340 26 April 2020 COVID-19 has changed the world we live in. Even those who may not have…
Dialysis Diaries: Long Term Complications
The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…
Dialysis Diaries: Heart Problems
Atypical HUS patients who have progressed to kidney failure and do not have access to a complement inhibitor like Eculizumab have…
Dialysis Diaries
Atypical HUS affects about 2-3 per million population according to some estimates. Eculizumab, sold under the brand name Soliris by Alexion…
Atypical HUS – Rare Disease Day 2018
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…