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Read more about the article Kamal is an aHUS Super Hero

Kamal is an aHUS Super Hero

  • Post author:Len Woodward
  • Post published:November 27, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Kamal Shah is a Director/Trustee of aHUS alliance Global Action. He first had aHUS over 25 years ago. It was triggered…

Continue ReadingKamal is an aHUS Super Hero
Read more about the article aHUS are we there yet?

aHUS are we there yet?

  • Post author:Len Woodward
  • Post published:January 17, 2022
  • Post category:Featured
  • Post comments:0 Comments

Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…

Continue ReadingaHUS are we there yet?
Read more about the article Living with aHUS- what would you say?

Living with aHUS- what would you say?

  • Post author:Len Woodward
  • Post published:October 29, 2021
  • Post category:Featured
  • Post comments:0 Comments

If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…

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Read more about the article Kidney Disease & Dental Health

Kidney Disease & Dental Health

  • Post author:Linda Burke
  • Post published:May 24, 2021
  • Post category:Featured
  • Post comments:0 Comments

Kidney Disease & Dental Health - aHUS Alliance Global Action looks at common topics for oral health and dental care, and provides an overview of what issue might be different or need special attention for people with kidney disease. A resource list is provided FMI.

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Read more about the article COVID-19:  Challenges faced by Dialysis Patients

COVID-19: Challenges faced by Dialysis Patients

  • Post author:Kamal Shah
  • Post published:April 26, 2020
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 340 26 April 2020   COVID-19 has changed the world we live in. Even those who may not have…

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Read more about the article Dialysis Diaries: Long Term Complications

Dialysis Diaries: Long Term Complications

  • Post author:Kamal Shah
  • Post published:July 24, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

  The kidneys are wonder-organs. They do so many different things. They impact so many life-processes. It is impossible for individuals…

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Read more about the article Dialysis Diaries: Heart Problems

Dialysis Diaries: Heart Problems

  • Post author:Kamal Shah
  • Post published:July 11, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Atypical HUS patients who have progressed to kidney failure and do not have access to a complement inhibitor like Eculizumab have…

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Read more about the article Dialysis Diaries

Dialysis Diaries

  • Post author:Kamal Shah
  • Post published:June 10, 2019
  • Post category:Uncategorized
  • Post comments:0 Comments

Atypical HUS affects about 2-3 per million population according to some estimates. Eculizumab, sold under the brand name Soliris by Alexion…

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Read more about the article Atypical HUS – Rare Disease Day 2018

Atypical HUS – Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:December 1, 2017
  • Post category:Featured
  • Post comments:0 Comments

Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…

Continue ReadingAtypical HUS – Rare Disease Day 2018
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