Another chat about vaccinations and aHUS/cTMA
Hi I heard your recent vaccination conversation with someone about deciding whether to vaccinate or not when a predisposition to aHUS…
Not too little not too much complement
Complement is known to be a collection of components which act individually and collectively to protect the body from something foreign…
To vaccinate or not to vaccinate with aHUS
I am not going to have a vaccination. Fair enough vaccinations are not mandatory but why? aHUS Oh you have aHUS.…
An ill person happens to “walk” into a Hospital and is having an onset of aHUS…
For a person experiencing aHUS (atypical hemolytic uremic syndrome / C-TMA/cTMA) onset who arrives at a hospital, acute stabilization (often with…
Serious Infections- aHUS patients are their own early warning system
An article appeared last month about practical things that need to be done to limit the risk for complement inhibitor users,…
Meningitis outbreak and living with aHUS
A meningitis outbreak should be of particular concern to those living with aHUS. A recent outbreak in the UK was described…
A month of ravulizumab use adverse events
The Food and Drugs Administration has a database of adverse events (AEs) reported for all the drugs in use. It is…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…