What about aHUS and COVID Vaccinations and access to genetic testing and genetic research
There was one question about COVID vaccinations and aHUS in the RDD2022 Video, Global Action featured several articles about COVID vaccination…
Screening for aHUS at birth
Most babies are born healthy. Even those susceptible to aHUS due to genetic abnormalities are born healthy. Although it is rare,…
Someone has to be the first
Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…
Genetic testing for all? :Discuss
* To have genetic tests for all aHUS patients and families featured in the Rare Disease Day video ( see here).…
Genetic tests – to know or not?
Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS patients get to know and understand…