Finding new neighbours- Global aHUS Town
The search for more known neighbours in Global aHUS Town began this summer. At the start there were 59 countries where…
The search for more known neighbours in Global aHUS Town began this summer. At the start there were 59 countries where…
The annual aHUS Awareness Day video ( see HERE) had a theme of best decision making in the recovery from an…
Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause…
Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…
Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…
Visitors to the aHUS alliance Global Action website may have observed a new feature on our home page. Yes a world…
India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…