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Read more about the article Finding new neighbours- Global aHUS Town

Finding new neighbours- Global aHUS Town

  • Post author:Len Woodward
  • Post published:October 6, 2025
  • Post category:Featured
  • Post comments:0 Comments

The search for more known neighbours in Global aHUS Town began this summer. At the start there were 59 countries where…

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Read more about the article Decision making in aHUS Health Recovery

Decision making in aHUS Health Recovery

  • Post author:Len Woodward
  • Post published:September 29, 2025
  • Post category:Featured
  • Post comments:0 Comments

The annual aHUS Awareness Day video ( see HERE) had a theme of best decision making in the recovery from an…

Continue ReadingDecision making in aHUS Health Recovery
Read more about the article Idiopathic aHUS- so what ?

Idiopathic aHUS- so what ?

  • Post author:Len Woodward
  • Post published:September 25, 2025
  • Post category:Featured
  • Post comments:0 Comments

Hi Well that was another aHUS Awareness Day. Are you aware that 40% of aHUS patients have no known genetic cause…

Continue ReadingIdiopathic aHUS- so what ?
Read more about the article Discriminatory rare disease reach on social media platforms

Discriminatory rare disease reach on social media platforms

  • Post author:Len Woodward
  • Post published:September 19, 2025
  • Post category:Featured
  • Post comments:0 Comments

Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…

Continue ReadingDiscriminatory rare disease reach on social media platforms
Read more about the article Raising Global aHUS Awareness Everywhere

Raising Global aHUS Awareness Everywhere

  • Post author:Len Woodward
  • Post published:September 16, 2025
  • Post category:News
  • Post comments:0 Comments

Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…

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Read more about the article More countries becoming neighbours in Global aHUS Town

More countries becoming neighbours in Global aHUS Town

  • Post author:Len Woodward
  • Post published:September 11, 2025
  • Post category:Featured
  • Post comments:0 Comments

Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…

Continue ReadingMore countries becoming neighbours in Global aHUS Town
Read more about the article Welcoming another country to the “Global aHUS Town”

Welcoming another country to the “Global aHUS Town”

  • Post author:Len Woodward
  • Post published:August 21, 2025
  • Post category:News
  • Post comments:0 Comments

In the ever-evolving world of rare disease advocacy, each milestone marks not just progress, but hope. Today, hope takes on a…

Continue ReadingWelcoming another country to the “Global aHUS Town”
Read more about the article Global aHUS Neighbours – Nepal moves in to aHUS Town.

Global aHUS Neighbours – Nepal moves in to aHUS Town.

  • Post author:Len Woodward
  • Post published:July 10, 2025
  • Post category:Featured
  • Post comments:0 Comments

Visitors to the aHUS alliance Global Action website may have observed a new feature on our home page. Yes a world…

Continue ReadingGlobal aHUS Neighbours – Nepal moves in to aHUS Town.
Read more about the article India had its first aHUS patient conference- what next

India had its first aHUS patient conference- what next

  • Post author:Len Woodward
  • Post published:July 3, 2025
  • Post category:Featured/News
  • Post comments:0 Comments

India has had its first patient conference. A summary of what was covered has been posted on line and reposted below.…

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