Atypical HUS and School: Information about teaching & learning. Learners of any age may be affected by chronic illness or a rare disease like aHUS. What schools and employers should know about people living with atypical hemolytic uremic syndrome (aHUS)
What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or…
Everyone gets ill at some time don't they? Whether it is for example a cold, stomach upset or measles, people know…
4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment…
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there…
The FIRST Article in a Four Part Series Rare Disease Advocacy: Digging deeper into…
Rare Disease Day will be marked around the world on 28 February 2018 and the aHUS Alliance is pleased to announce…
aHUS is rarer than rare In patient advocacy for rare diseases like aHUS there seems to be a background cycle to…