aHUS as a rare disease 10 years ago
10 years ago global information about aHUS patients was more or less non existent. Vey sparse at best. An aHUS alliance…
10 years ago global information about aHUS patients was more or less non existent. Vey sparse at best. An aHUS alliance…
Last year Global Action brought attention to a research article ( Closing the CaHUS knowledge gap ) which stood out as…
Atypical HUS - research updates for Feb 2024
When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…
During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…
A cure for aHUS would mean an individual would be at no risk of the disease again. Patients ask Will there…
It’s 2024. A New Year.This year around the world about 4000 people will newly onset with the primary form of aHUS.…
"What the heck hit me to cause that and why" are not an unreasonable question for aHUS patients to ask. Collectively…
aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…