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Read more about the article Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”

  • Post author:Len Woodward
  • Post published:December 8, 2022
  • Post category:Featured/Uncategorized
  • Post comments:0 Comments

It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…

Continue ReadingStudy of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”
Read more about the article Recruiting to aHUS Trials is not easy

Recruiting to aHUS Trials is not easy

  • Post author:Len Woodward
  • Post published:November 21, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

Hey Global aHUS alliance. Hi, but its aHUS alliance Global Action actually Whatever, let's settle on GA. Well we have been…

Continue ReadingRecruiting to aHUS Trials is not easy
Read more about the article Atypical HUS Research:  NOV 2022 New Additions

Atypical HUS Research:  NOV 2022 New Additions

  • Post author:Linda Burke
  • Post published:November 10, 2022
  • Post category:Featured
  • Post comments:0 Comments

There are important publications about atypical HUS which people might miss given that key search terms may scan but miss the…

Continue ReadingAtypical HUS Research:  NOV 2022 New Additions
Read more about the article aHUS Drug Candidates – the 2022 Landscape

aHUS Drug Candidates – the 2022 Landscape

  • Post author:Linda Burke
  • Post published:September 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new…

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Read more about the article Topics in aHUS Research – Sept 2022

Topics in aHUS Research – Sept 2022

  • Post author:Linda Burke
  • Post published:September 7, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…

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Read more about the article Accessible to all: aHUS Research

Accessible to all: aHUS Research

  • Post author:Linda Burke
  • Post published:June 22, 2022
  • Post category:News
  • Post comments:0 Comments

Atypical HUS Research, view over 900 aHUS-specific publications categorized by topic, compiled by the aHUS Alliance Global Action team.

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Read more about the article Long term aHUS effects

Long term aHUS effects

  • Post author:Len Woodward
  • Post published:March 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

Long term aHUS disease, diagnosis and treatment legacies on both physical and mental health have featured in two aHUS Patient Research…

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Read more about the article YOU’VE GOT aHUS!

YOU’VE GOT aHUS!

  • Post author:Len Woodward
  • Post published:February 28, 2022
  • Post category:News
  • Post comments:0 Comments

The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…

Continue ReadingYOU’VE GOT aHUS!
Read more about the article aHUS Trial Watch 14

aHUS Trial Watch 14

  • Post author:Len Woodward
  • Post published:November 27, 2021
  • Post category:News
  • Post comments:0 Comments

A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…

Continue ReadingaHUS Trial Watch 14
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