Helping another TMA’s Initiative- CAPS
CAPS or Catastrophic Antiphospholipid Syndrome is an autoimmune and kidney disease which shares the same experience of thrombotic microangiopathy with aHUS/…
ERKNET and TMA patients in Europe
Very little is heard from ERKNet (European Rare Kidney Disease Network) these days. Global Action used to have articles about its…
The 2024 Global aHUS Poll Progress
When conceived it was known from previous experiences that having a global poll about aHUS was going to be a major…
aHUS Research Updates – April 2026
What’s new in aHUS research? Quite a bit, if you consider that over four dozen publications have just been added to…
Answering and questioning the KDIGO aHUS Questions ( Part 1)
KDIGO met again to progress, through controversial means, knowledge of aHUS, or what ever it is called these days. There were…
Plain language summary of an aHUS Clinical Trial
This is a plain language summary of the final article to be published about Stopping Eculizumab Treatment Safely Clinical Trial. The…
The rapid development of aHUS knowledge and its treatment in China
Until eight years ago China had no policy on the care of people with rare diseases. There were discussions about it…
What’s New in aHUS Research – Dec 2025 Edition
Keeping track of medical advancements in the rare disease space is challenging, but for those interested in atypical HUS the aHUS…
Withdrawing from treatment- patients’ perception
What is it like from an aHUS patients' perspective to decide to withdraw from complement inhibitor treatment? Much is published about…
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