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Read more about the article aHUS care pathway

aHUS care pathway

  • Post author:Len Woodward
  • Post published:May 10, 2022
  • Post category:Featured
  • Post comments:0 Comments

The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…

Continue ReadingaHUS care pathway
Read more about the article aHUS limitations

aHUS limitations

  • Post author:Len Woodward
  • Post published:May 8, 2022
  • Post category:Featured
  • Post comments:0 Comments

Zinovieva asked two related questions in the RDD 2020 video The issues of what provokes ( or triggers) the development of…

Continue ReadingaHUS limitations
Read more about the article Side effects of ravulizimab between infusions

Side effects of ravulizimab between infusions

  • Post author:Len Woodward
  • Post published:May 7, 2022
  • Post category:News
  • Post comments:0 Comments

Ravulizumab is more widely used these days, particularly in the PNH community. Apart from the longer infusion intervals PNH patients benefit…

Continue ReadingSide effects of ravulizimab between infusions
Read more about the article Can an unknown aHUS  susceptibility be passed on?

Can an unknown aHUS susceptibility be passed on?

  • Post author:Len Woodward
  • Post published:May 2, 2022
  • Post category:Featured
  • Post comments:0 Comments

Usually inheritance questions about a HUS relate to genetic susceptibility mutations/variants/markers that are known. This one is different because it is…

Continue ReadingCan an unknown aHUS susceptibility be passed on?
Read more about the article What about aHUS and COVID Vaccinations and access to genetic testing and genetic research

What about aHUS and COVID Vaccinations and access to genetic testing and genetic research

  • Post author:Len Woodward
  • Post published:April 28, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

There was one question about COVID vaccinations and aHUS in the RDD2022 Video, Global Action featured several articles about COVID vaccination…

Continue ReadingWhat about aHUS and COVID Vaccinations and access to genetic testing and genetic research
Read more about the article aHUS survival and social support

aHUS survival and social support

  • Post author:Len Woodward
  • Post published:April 25, 2022
  • Post category:Featured
  • Post comments:0 Comments

The RDD2022 Video question by Heitor may be one which is not specific to aHUS, . It raises issues, which are…

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Read more about the article Screening for aHUS at birth

Screening for aHUS at birth

  • Post author:Len Woodward
  • Post published:April 19, 2022
  • Post category:News
  • Post comments:0 Comments

Most babies are born healthy. Even those susceptible to aHUS due to genetic abnormalities are born healthy. Although it is rare,…

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Read more about the article Can aHUS relapse in pregnancy?

Can aHUS relapse in pregnancy?

  • Post author:Len Woodward
  • Post published:April 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

Pregnancy is an important topic and has featured a lot on this website. Quite a few questions about it in the…

Continue ReadingCan aHUS relapse in pregnancy?
Read more about the article Strokes, DGKE , Sports & Recreation and aHUS questions

Strokes, DGKE , Sports & Recreation and aHUS questions

  • Post author:Len Woodward
  • Post published:April 11, 2022
  • Post category:News
  • Post comments:0 Comments

Three questions in the RDD22 video are each very specific but reflect the diverse impact of having had aHUS. Firstly one…

Continue ReadingStrokes, DGKE , Sports & Recreation and aHUS questions
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