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Read more about the article What would stop eculizumab working for aHUS?

What would stop eculizumab working for aHUS?

  • Post author:Len Woodward
  • Post published:March 14, 2022
  • Post category:Featured
  • Post comments:1 Comment

Eculizumab was approved by the US Food and Drugs Administration for PNH for 15 years ago on 16 March. This September…

Continue ReadingWhat would stop eculizumab working for aHUS?
Read more about the article Can aHUS treatment be affordable for all?

Can aHUS treatment be affordable for all?

  • Post author:Len Woodward
  • Post published:March 11, 2022
  • Post category:Featured
  • Post comments:0 Comments

A very important topic for many aHUS patients around the world with an unmet need. Patients have included the topic in…

Continue ReadingCan aHUS treatment be affordable for all?
Read more about the article COVID TRIGGERS aHUS

COVID TRIGGERS aHUS

  • Post author:Len Woodward
  • Post published:March 1, 2022
  • Post category:News
  • Post comments:0 Comments

It was March 2020 and COVID appears on www.ahusallianceaction.org for first time with a question: Can the coronavirus trigger an infection…

Continue ReadingCOVID TRIGGERS aHUS
Read more about the article YOU’VE GOT aHUS!

YOU’VE GOT aHUS!

  • Post author:Len Woodward
  • Post published:February 28, 2022
  • Post category:News
  • Post comments:0 Comments

The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…

Continue ReadingYOU’VE GOT aHUS!
Read more about the article SHU atypique: RARE à l’écoute Podcasts

SHU atypique: RARE à l’écoute Podcasts

  • Post author:ahusalliance
  • Post published:January 23, 2022
  • Post category:Uncategorized
  • Post comments:0 Comments

 Si vous désirez vous informer et aller plus loin dans la connaissance de cette maladie rare, nous vous invitons à lire…

Continue ReadingSHU atypique: RARE à l’écoute Podcasts
Read more about the article aHUS are we there yet?

aHUS are we there yet?

  • Post author:Len Woodward
  • Post published:January 17, 2022
  • Post category:Featured
  • Post comments:0 Comments

Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…

Continue ReadingaHUS are we there yet?
Read more about the article COVID and aHUS at the end of 2021

COVID and aHUS at the end of 2021

  • Post author:Len Woodward
  • Post published:December 31, 2021
  • Post category:News
  • Post comments:0 Comments

As the year ends we are still living with COVID. It seems like it is never ending. And it is and…

Continue ReadingCOVID and aHUS at the end of 2021
Read more about the article Living with aHUS- what would you say?

Living with aHUS- what would you say?

  • Post author:Len Woodward
  • Post published:October 29, 2021
  • Post category:Featured
  • Post comments:0 Comments

If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…

Continue ReadingLiving with aHUS- what would you say?
Read more about the article Good complement goes aHUS bad

Good complement goes aHUS bad

  • Post author:ahusalliance
  • Post published:October 20, 2021
  • Post category:Featured
  • Post comments:0 Comments

  OK, so HUS is caused by e.coli toxins and aHUS results from Complement dysregulation. Both are thrombotic microangiopathies. HUS is…

Continue ReadingGood complement goes aHUS bad
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