Someone has to be the first
Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…
Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…
The aHUS Alliance recently conducted an interview with Dr Ralf Reski, a professor and researcher in the field of…
What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…
What does the term ‘rare disease advocacy’ mean to you? Patients and caregivers speaking up on social media or…
Everyone gets ill at some time don't they? Whether it is for example a cold, stomach upset or measles, people know…
The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…
4 MYTHS of Rare Disease Advocacy: Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment…
Adding value in patient advocacy is obvious. Or is it? Those involved in patient advocacy constantly ask themselves “Am I achieving…
The SECOND Article in a Four Part Series Rare Disease Advocacy: Digging deeper into Common Misperceptions Although there…