Skip to content
aHUS Alliance Action
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate
  • Toggle website search
Search this website
Menu Close
  • Home
  • About aHUS Alliance
  • Articles
  • Info Centre
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate
  • Toggle website search

SHUa

  1. Home>
  2. News & Blogs>
  3. SHUa>
  4. Page 23
Read more about the article Someone has to be the first

Someone has to be the first

  • Post author:ahusalliance
  • Post published:April 1, 2018
  • Post category:Featured
  • Post comments:0 Comments

Twenty years ago today, in 1998, an article appeared in Kidney International , the Journal of the International Society of Nephrology…

Continue ReadingSomeone has to be the first
Read more about the article Dr Ralf Reski on Moss-Made Biopharmaceuticals: aHUS Alliance Interview

Dr Ralf Reski on Moss-Made Biopharmaceuticals: aHUS Alliance Interview

  • Post author:ahusalliance
  • Post published:March 21, 2018
  • Post category:Featured
  • Post comments:0 Comments

    The aHUS Alliance recently conducted an interview with Dr Ralf Reski, a professor and researcher in the field of…

Continue ReadingDr Ralf Reski on Moss-Made Biopharmaceuticals: aHUS Alliance Interview
Read more about the article The Many Faces of Atypical HUS:  Rare Disease Day 2018

The Many Faces of Atypical HUS: Rare Disease Day 2018

  • Post author:ahusalliance
  • Post published:March 5, 2018
  • Post category:Featured
  • Post comments:0 Comments

    What happens after the world annually marks Rare Disease Day on the last day of February? We carry on…

Continue ReadingThe Many Faces of Atypical HUS: Rare Disease Day 2018
Read more about the article Creating Your Advocacy Footprint in the Rare Disease Arena

Creating Your Advocacy Footprint in the Rare Disease Arena

  • Post author:ahusalliance
  • Post published:February 25, 2018
  • Post category:Featured
  • Post comments:0 Comments

    What does the term ‘rare disease advocacy’ mean to you?  Patients and caregivers speaking up on social media or…

Continue ReadingCreating Your Advocacy Footprint in the Rare Disease Arena
Read more about the article They do not get it , or do they?

They do not get it , or do they?

  • Post author:ahusalliance
  • Post published:February 1, 2018
  • Post category:Featured
  • Post comments:0 Comments

Everyone gets ill at some time don't they? Whether it is for example  a cold, stomach upset or measles, people know…

Continue ReadingThey do not get it , or do they?
Read more about the article Patients Included:  Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)

Patients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)

  • Post author:ahusalliance
  • Post published:January 16, 2018
  • Post category:Featured
  • Post comments:0 Comments

    The Last in the aHUS Alliance Four Part Series Patients Included: Reality or Unmet Goal? 4 MYTHS of Rare…

Continue ReadingPatients Included: Reality or Unmet Goal? (#4: MYTHS of Rare Disease Advocacy)
Read more about the article Pathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3

Pathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3

  • Post author:ahusalliance
  • Post published:January 7, 2018
  • Post category:Featured
  • Post comments:0 Comments

        4 MYTHS of Rare Disease Advocacy:  Digging deeper into Common Misperceptions Pathways of Patient Engagement & Recruitment…

Continue ReadingPathways of Patient Engagement – 4 Myths of Rare Disease Advocacy: Part 3
Read more about the article Does the aHUS alliance add value?

Does the aHUS alliance add value?

  • Post author:ahusalliance
  • Post published:December 27, 2017
  • Post category:Featured
  • Post comments:0 Comments

Adding value in patient advocacy is obvious. Or is it? Those involved in patient advocacy constantly ask themselves “Am I achieving…

Continue ReadingDoes the aHUS alliance add value?
Read more about the article 4 Myths of Rare Disease Advocacy:  Part 2

4 Myths of Rare Disease Advocacy: Part 2

  • Post author:ahusalliance
  • Post published:December 26, 2017
  • Post category:Featured
  • Post comments:0 Comments

    The SECOND Article in a Four Part Series Rare Disease Advocacy:  Digging deeper into Common Misperceptions   Although there…

Continue Reading4 Myths of Rare Disease Advocacy: Part 2
  • Go to the previous page
  • 1
  • …
  • 20
  • 21
  • 22
  • 23
  • 24
  • 25
  • 26
  • 27
  • Go to the next page

Quick Links

  • Home
  • About aHuS Alliance
  • Articles
  • Info Center
  • Patient Associations
  • Clinicians
  • Contact Us
  • Donate

Subscribe to our Newsletter

Get all the latest news from the aHUS world. For more information:

Email is required Email is not valid
Thanks for your subscription.
Failed to subscribe, please contact admin.

aHUS Keep Connected

Connect with us

Facebook-f Twitter Instagram Linkedin Envelope
Copyright 2025 - © aHUS alliance