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Read more about the article World Kidney Day  2024 – a webinar

World Kidney Day 2024 – a webinar

  • Post author:Len Woodward
  • Post published:March 14, 2024
  • Post category:News
  • Post comments:0 Comments

Today is World Kidney Day. An annual awareness day to bring kidney disease matters to the world’s attention. aHUS is a…

Continue ReadingWorld Kidney Day 2024 – a webinar
Read more about the article Variants of uncertain significance (VUS) for aHUS

Variants of uncertain significance (VUS) for aHUS

  • Post author:Len Woodward
  • Post published:March 11, 2024
  • Post category:Featured
  • Post comments:0 Comments

If or when aHUS patients or their families are tested for complement genetic variants which could be the cause of their…

Continue ReadingVariants of uncertain significance (VUS) for aHUS
Read more about the article What  the RDD24 aHUS video tells us.

What the RDD24 aHUS video tells us.

  • Post author:Len Woodward
  • Post published:March 4, 2024
  • Post category:News
  • Post comments:0 Comments

The Steven Spielberg of aHUS videos (Jeff) has produce another aHUS video for RDD24. Sixty six aHUS patients /carers starred in…

Continue ReadingWhat the RDD24 aHUS video tells us.
Read more about the article Review of the research that matters to aHUS patients (Part 2)

Review of the research that matters to aHUS patients (Part 2)

  • Post author:Len Woodward
  • Post published:February 12, 2024
  • Post category:Featured
  • Post comments:0 Comments

When this review of the aHUS patients research agenda began, the question was asked "is a patient research agenda worth while?".…

Continue ReadingReview of the research that matters to aHUS patients (Part 2)
Read more about the article Review of the aHUS patient research agenda (Part 1)

Review of the aHUS patient research agenda (Part 1)

  • Post author:Len Woodward
  • Post published:February 7, 2024
  • Post category:Featured
  • Post comments:0 Comments

During December and January last, there has been a review of each of the 15 topics in the patients research agenda.…

Continue ReadingReview of the aHUS patient research agenda (Part 1)
Read more about the article Epidemiology – aHUS Agenda Topic 15-

Epidemiology – aHUS Agenda Topic 15-

  • Post author:Len Woodward
  • Post published:January 31, 2024
  • Post category:News
  • Post comments:0 Comments

aHUS epidemiology is the about how many aHUS patients there are. The numbers onsetting and surviving. It’s “Incidence” and “prevalence”. How…

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Read more about the article Family Planning- aHUS Agenda Topic 14

Family Planning- aHUS Agenda Topic 14

  • Post author:Len Woodward
  • Post published:January 29, 2024
  • Post category:Featured
  • Post comments:0 Comments

Pregnancy is a common trigger of aHUS, this can impact on someone who is predisposed or related to someone predisposed to…

Continue ReadingFamily Planning- aHUS Agenda Topic 14
Read more about the article Active life -aHUS Agenda Topic 13

Active life -aHUS Agenda Topic 13

  • Post author:Len Woodward
  • Post published:January 25, 2024
  • Post category:Featured
  • Post comments:0 Comments

An illness like aHUS can have an impact on a normal active life during the acute stage of the illness and…

Continue ReadingActive life -aHUS Agenda Topic 13
Read more about the article Mental health – aHUS Agenda Topic 12

Mental health – aHUS Agenda Topic 12

  • Post author:Len Woodward
  • Post published:January 22, 2024
  • Post category:Featured
  • Post comments:0 Comments

Mental health is an extensive issue of modern times focusing on depression and anxieties. The inverse of depression is self-esteem how…

Continue ReadingMental health – aHUS Agenda Topic 12
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