Modifying the name for aHUS- a to do list?
The medical community may not agree on everything but all agree on modifying the disease name aHUS.. A report published in…
Discontinuation – no longer needing complement inhibition
Complement inhibition treatment discontinuation is a topic that Global Action has led on in the aHUS patient advocacy world for several…
Is a patient organisation still needed for aHUS?
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
aHUS etc dip into ASH 2024
Some of the latest aHUS, CM-TMA and TMA research being displayed at the American Society of Haematologists , ASH, conference 2024…
COMPLOSOME : SOMETHING ”NEW” ABOUT COMPLEMENT
Hi GA (Global Action) tell me something new about complement. Hi again. The Complosome. The “COM PLO SOAM” what is that?…
700 facts about aHUS?
This is the 700 th blog article about aHUS on this website. When thinking about how to mark this milestone a…
Numbers of aHUS patients
The aHUS patient community asked in its research agenda what are the numbers of aHUS patients. Global Action has written about…
Mental health aHUS Day video- insights
The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it…
Change of name for aHUS news
What does the internet have to say about news of change of name for aHUS? Global Action asked it, has the…