Is it time to have aHUS
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a…
aHUS Community Advisory Board News
Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…
aHUS trial watch 17- NM8074
Another trial of a complement inhibitor for aHUS treatment has been announced , it is for something currently called NM8074. Full…
A call for interest in joining the aHUS CAB
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
aHUS is confusing
Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…
HST TMA Is It aHUS ?
- An Hematopoietic Stem Cell Transplant (HSCT) is a way to treat some malignant and benign diseases. The transplant replaces disease…
Study of the aHUS Diagnosis Process- the “whys”, “whats” and “hows”
It is now over two years ago that Global Action began a major study of the aHUS Diagnosis Process, it is…
aHUS at ASN Kidney Week 2022
Early in November in the USA thoughts not just turn to elections but also to Kidney Week. The American Society of…
You don’t have aHUS any more
You don't have aHUS any more. Well you have aHUS but not for much longer. And no you won't be cured.…
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