Cure – aHUS Agenda Topic 9
A cure for aHUS would mean an individual would be at no risk of the disease again. Patients ask Will there…
A New Year and new to aHUS
It’s 2024. A New Year.This year around the world about 4000 people will newly onset with the primary form of aHUS.…
ChatGPT and aHUS Christmas chat ( and an aHUS carol)
Last year at this time Global Action published an article recording a conversation we had with ChatGPT ( an AI thing)…
aHUS – Stopping eculizumab treatment safely
For aHUS patients stopping eculizumab (or even Ravulizumab) treatment is an important but emotive issue. Having had the treatment when seriously…
Algorithms: Steps to Diagnose aHUS & other TMAs
Algorithms to diagnose aHUS apart from other syndromes of TMA exist, but why do these tools with problem solving steps seem under-utilized?
Closing the CaHUS knowledge gap
Two days ago an article appeared in BLOOD journal which was the result of a comprehensive analysis of data about patients…
A rose by any other name revisited
One of the most widely read articles on this website has been an article about aHUS name The rose article was…
ADAMTS13 Testing: Fast 4 TMA Program
USTMA has partnered with Machaon Diagnostics to offer free ADAMTS13 testing through the new ‘Fast 4 TMA’ program for patients in…
Is it time to have aHUS
Anyone who can get aHUS can get it any time. That makes sense the disease is just the product of a…
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