aHUS Clinicians & Investigators

Atypical HUS is a very rare and complex disease.  We thank those who collaborate on global aHUS research efforts, and extend our gratitude to the physicians and groups who partner with patient organizations and international aHUS advocacy efforts.

We recognize with special appreciation these clinicians and aHUS investigators who connect with our aHUS Alliance Global Action team, and thank them for acting as a connecting point to advance aHUS research in practice.




Gianluigi Ardissino   MD, Ph.D
Director of the Center for HUS Prevention, Control and Management

Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico

E:  ardissino@centroseu.org



Arvind Bagga  MD, FAMS, FIAP, FISN
Professor of Pediatrics
ICMR Center for Advanced Research in Nephrology

All India Institute of Medical Sciences
New Delhi 110029


Tel. +91-11-26593472, +91-9810590809
E:  arvindbagga@hotmail.com



Nathan T Connell   MD, M.P.H.    
Assistant Professor of Medicine, Harvard Medical School      
Hematology Division, Brigham and Women’s Hospital   
75 Francis Street, Boston, MA 02115

Tel: 617-732-5190     Fax: 617-732-5706



Johannes Hofer, MD  
Pediatric Nephrology and Neurology      
Institute of Neurology of Senses and Language,       
Hospital of St John of God, Linz, Austria      
Research collaboration with Medical University Innsbruck,     
Department of Pediatrics I, Innsbruck, Austria   

E:  johannes.hofer@bblinz.at



Maria Izabel de Holanda, MD, PhD    
Staff Nephrologist     
Nephrology Fellowship Program Coordinator
Department of Nephrology and Kidney Transplant
Hospital Federal de Bonsucesso
Av.londres 616, prédio 1, nefrologia
Rio de Janeiro- Brazil

Tel.   +55 21 39779636  or + 55 21 999072244
E:   izabeldeholanda@gmail.com



David Kavanagh  FRCP PhD  
Professor of Complement Therapeutics 
Honorary Consultant Nephrologist   

National Renal Complement Therapeutics Centre
aHUS Service, Building 26
Royal Victoria Infirmary
Queen Victoria Road
Newcastle upon Tyne

Tel:  NRCTC Direct Line +44 191 282 0385
E:  NRCTC atypical.hus@nhs.net




Mathieu Lemaire   MSc, MDCM, PhD
Staff Nephrologist, The Hospital for Sick Children
Scientist-track Investigator, Cell Biology, Sick Kids Research Institute
Asst. Professor, Paediatrics, University of Toronto
Toronto, Canada

The Hospital for Sick Children
555 University Avenue
Toronto, ON, M5G 1X8

Tel:  (416) 813-7654   ext. 309419
E:  mathieu.lemaire@sickkids.ca



Tanja Kersnik Levart, MD, PhD  
Professor of Paediatrics    
Head of Division of Nephrology, Dialysis and Transplantation at the Paediatric Clinic                 
University Medical Centre Ljubljana   
Bohoričeva 20
1000 Ljubljana

Tel.   +386 1 522 71 45    Fax: +386 1 522 96 20
E:   tanja.kersnik@guest.arnes.si




Christoph Licht   MD, FRCPC, FASN
Professor of Paediatrics
Staff Nephrologist and
Director, Dialysis & Apheresis Program
Division of Nephrology
Senior Associate Scientist
Cell Biology Program

The Hospital for Sick Children
555 University Avenue
Toronto, ON, M5G 1X8

Tel.  +1 416 813 309343    Fax. +1 416 813 6271
Email:  christoph.licht@sickkids.ca



Adrian Catalin Lungu   MD  
Paediatric Nephrology
Bucharest, Romania

Tel:  +40 722 131950
E:  adilungu@mediakompass.ro



Yaeko Motoyoshi  MD, PhD
Department of Pediatrics, Graduate Medical School
Tokyo Medical and Dental University

E:   ymoped@tmd.ac.jp



Carla M. Nester   MD, MSA
University of Iowa
Adult and Pediatric Nephrology

U of Iowa Heath Care
Tel. (319) 356-1616
Iowa City, Iowa

Tel.  (319) 356-7249    Fax.  (319) 384-9616
E:   carla-nester@uiowa.edu



Fatih Ozaltin  M.D.      
Assoc. Professor of Pediatrics and Pediatric Nephrology   
Head, Nephrogenetics Laboratory
Hacettepe University Faculty of Medicine
06100, Sıhhiye, Ankara       

E:    fozaltin@hacettepe.edu.tr      ozaltinf@gmail.com



Zoltán Prohászka  MD, PhD       
Professor of Immunology and Director,      
Füst György Complement Diagnostic Laboratory   
3rd Department of Medicine, Research Laboratory,
Semmelweis University, Budapest, Hungary    

Tel.    +361-3251379
E:   prohaszka.zoltan@med.semmelweis-univ.hu



Rupesh Raina   MD
Director of Medical Research, Internal Medicine
Akron General Medical Center 
Pediatric Nephrologist

Akron Children’s Hospital, Nephrology & Pediatric Hypertension Center 
1 Perkins Square
Akron, OH, 44308

Tel.  330-543-8950
Email: RRaina@chmca.org



Prof George Reusz   MD, PhD, ScD
First Department of Pediatrics,
Division of Clinical Nephrology and Dialysis
Semmelweis University, Budapest, Hungary

Tel.   +361-3247795
E:    reuszgs@gmail.com



Andrew M. Siedlecki   MD
Brigham and Women’s Hospital
Division of Renal Medicine, Transplant Section
Harvard Medical School
Boston, MA

Tel:  1-314-809-2879
E:  asiedlecki@bwh.harvard.edu



Brankica Spasojevic-Dimitrijeva  
Senior Consultant Pediatric Nephrologist      
Clinical Assistant in Pediatrics         
University of Belgrade, School of Medicine
University Children’s Hospital
Nephrology Department     
Tirsova 10, 11000, Belgrade

Tel.  +381 112060765 (office)     +381 63 86 34 568 (cell)
E:  brankica.spasojevic@udk.bg.ac.rs    brankicaspasojevic@yahoo.com



Constantinos J. Stefanidis   MD, PhD.     
Head of Pediatric Nephrology      
‘A. and P. Kyriakou’ Children’s Hospital
Athens, Greece    

Tel:   0030694447000 
E:  cjstefanidis@gmail.com



Prof. Maria Szczepańska  MD, PhD
Department of Pediatrics,
Department of Pediatric Nephrology with
Pediatric Dialysis Unit
Independent Public Clinical Hospital No 1
Silesian Medical University in Katowice
Address: ul. 3 Maja 13-15, 41 – 800 Zabrze

Tel., fax    32 3704 292   Tel.  32 37 04 305
E:  dializy_dzieciece_zabrze@poczta.onet.pl



Velibor Tasic, MD, PhD         
Professor in Pediatrics and Pediatric Nephrology          
Senior Consultant Pediatric Nephrologist             
Head of the Department              
University Children’s Hospital,    
Medical School Skopje
17 Vodnjanska, 1000 Skopje

Tel.   +389-2-3147721 (office)   +389-75-789105 (cell)
E:    vtasic2003@gmail.com



Rezan Topaloglu  MD  
Professor of Pediatrics and Pediatric Nephrology   
Head, Department of Pediatric Nephrology
Hacettepe University Faculty of Medicine      
06100 Ankara Turkey

E:  rezantopaloglu@hacettepe.edu.tr



Nicole CAJ van de Kar   MD, PhD
Pediatric Nephrologist
Department of Pediatric Nephrology

Radboudumc Amalia Children’s Hospital
P.O.Box 9101, 6500 HB Nijmegen, The Netherlands
Geert Grooteplein Zuid 10, 6525 GA Nijmegen, the Netherlands  (route 804)

Tel:  +31 (0)24-3614430
E:  Nicole.vandeKar@radboudumc.nl



Prof. Aleksandra Żurowska          
Department of Pediatric and Adolescent Nephrology & Hypertension   
University Clinical Center     
Medical University of Gdansk   
Address: Dębinki 7, 80-952 Gdańsk , Poland

Tel.   +48 58 349 28 50     Fax.  +48 58 349 28 52
E:    azur@gumed.edu.pl




Please contact us at

info@aHUSallianceAction.org for questions or inquiries.