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Read more about the article YOU’VE GOT aHUS!

YOU’VE GOT aHUS!

  • Post author:Len Woodward
  • Post published:February 28, 2022
  • Post category:News
  • Post comments:0 Comments

The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…

Continue ReadingYOU’VE GOT aHUS!
Read more about the article aHUS are we there yet?

aHUS are we there yet?

  • Post author:Len Woodward
  • Post published:January 17, 2022
  • Post category:Featured
  • Post comments:0 Comments

Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…

Continue ReadingaHUS are we there yet?
Read more about the article TMA: the Need for a Multidisciplinary Team Approach

TMA: the Need for a Multidisciplinary Team Approach

  • Post author:Linda Burke
  • Post published:November 5, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…

Continue ReadingTMA: the Need for a Multidisciplinary Team Approach
Read more about the article aHUS Diagnosis Process-First Report

aHUS Diagnosis Process-First Report

  • Post author:Len Woodward
  • Post published:September 24, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…

Continue ReadingaHUS Diagnosis Process-First Report
Read more about the article Atypical HUS 1.0

Atypical HUS 1.0

  • Post author:ahusalliance
  • Post published:July 10, 2018
  • Post category:Uncategorized
  • Post comments:0 Comments

What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.

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Read more about the article Atypical HUS: Symptoms can be Perplexing

Atypical HUS: Symptoms can be Perplexing

  • Post author:ahusalliance
  • Post published:March 15, 2018
  • Post category:Featured
  • Post comments:0 Comments

    People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the…

Continue ReadingAtypical HUS: Symptoms can be Perplexing
Read more about the article Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

  • Post author:ahusalliance
  • Post published:October 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)?  You’ve found…

Continue ReadingAtypical HUS Facts – 2017 aHUS Alliance Fact Sheets
Read more about the article Thinking More About aHUS Today.

Thinking More About aHUS Today.

  • Post author:ahusalliance
  • Post published:September 24, 2017
  • Post category:Featured
  • Post comments:0 Comments

So aHUS is a genetic disease caused by the aHUS gene. Many people talk about "the aHUS gene" as though it…

Continue ReadingThinking More About aHUS Today.
Read more about the article Videos about aHUS which make you think differently

Videos about aHUS which make you think differently

  • Post author:ahusalliance
  • Post published:September 16, 2017
  • Post category:Featured
  • Post comments:0 Comments

Last month the aHUS alliance in partnership with Andrew Siedlecki , the USA National Coordinator for the aHUS Registry and other…

Continue ReadingVideos about aHUS which make you think differently
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