A New Year and new to aHUS
It’s 2024. A New Year.This year around the world about 4000 people will newly onset with the primary form of aHUS.…
It’s 2024. A New Year.This year around the world about 4000 people will newly onset with the primary form of aHUS.…
Genetic testing again a topic but this time it is of the patient; and is important for prognosis as well as…
Algorithms to diagnose aHUS apart from other syndromes of TMA exist, but why do these tools with problem solving steps seem under-utilized?
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
Can MedEd Encourage Specialists to Form TMA Teams? Tiny clots which form in the body’s small blood vessels - in brief,…
The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…
What is atypical HUS? How is aHUS diagnosed and treated? Providing a quick start to begin learning about the rare disease atypical hemolytic uremic syndrome, Atypical HUS 1.0 offers a list of key assets as your initial set of aHUS resources & info.
People living with the rare disease atypical hemolytic uremic syndrome (atypical HUS or aHUS) face many challenges, including the…