Improving outcomes for “aHUS” patients, I was there.
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting…
As an aHUS advocate you can often be surprised by events. Nearly three months ago I received an e mail inviting…
Fund raising, which began when aHUSUK still existed, has been put to use to help fund research which may improve the…
aHUS patients are people. People are different. But only aHUS people have had aHUS. It is something they share together. As…
Atypical HUS Fact Sheet: 2022 Sept 2023
When someone is affected by aHUS, the issue of it being a rare disease soon becomes apparent. The injustices felt by…
What’s new in 2022 regarding expansion in atypical HUS knowledge, and advancements for investigational drugs which may have potential as new…
Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…
We’re very pleased to offer this second in our series of ‘aHUS around the World’ where we feature the news and…
Breaking news Breaking News Breaking News Due to unforeseen events the planned Town Hall meetings on aHUS awareness are cancelled. Sorry…