RDD23 VIDEO – RESULTS REPORT
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
WWW.AHUSALLIANCEGLOBALACTION.ORG 18 March 2023 aHUS PATIENTS' VIEWS ON THE ATTRIBUTION OF ADVERSE EVENTS /SIDE EFFECTS EXPERIENCED DUE TO EITHER THEIR PRIMARY…
Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…
I know it should not matter so much but whenever I see incidence and prevalence figures for aHUS in articles etc,…
Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…
Another trial of a complement inhibitor for aHUS treatment has been announced , it is for something currently called NM8074. Full…
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
Sometimes it can be confusing being an aHUS patient. Even to knowing whether you are really an aHUS patient. Even if…
We’re pleased to announce that our latest edition of The aHUS Global Advocate newsletter has been released (Vol 6, Jan 2023)…
Sometimes there are fascinating articles related to atypical HUS which people might miss, and it’s then that it’s particularly helpful to…