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Read more about the article aHUS Global Advocate Newsletter: Nov 2023

aHUS Global Advocate Newsletter: Nov 2023

  • Post author:Linda Burke
  • Post published:November 21, 2023
  • Post category:Featured
  • Post comments:0 Comments

Keep up to date with the aHUS Global Advocate newsletter, Volume 8 edition for November 2023. FMI: Learn how to obtain your free subscription.

Continue ReadingaHUS Global Advocate Newsletter: Nov 2023
Read more about the article Cause Factors- aHUS Agenda Topic 1

Cause Factors- aHUS Agenda Topic 1

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

"What the heck hit me to cause that and why" are not an unreasonable question for aHUS patients to ask. Collectively…

Continue ReadingCause Factors- aHUS Agenda Topic 1
Read more about the article Is an aHUS patient research agenda worthwhile?

Is an aHUS patient research agenda worthwhile?

  • Post author:Len Woodward
  • Post published:November 19, 2023
  • Post category:Featured
  • Post comments:0 Comments

aHUS patients have a global research agenda. Work began on it in 2015 and after three iterations involving more than 200…

Continue ReadingIs an aHUS patient research agenda worthwhile?
Read more about the article Could there be a LONG aHUS like LONG COVID?

Could there be a LONG aHUS like LONG COVID?

  • Post author:Len Woodward
  • Post published:November 17, 2023
  • Post category:Featured
  • Post comments:2 Comments

We asked an expert “ Have you heard about Long COVID? Given the similarities could there be a LONG aHUS?” This…

Continue ReadingCould there be a LONG aHUS like LONG COVID?
Read more about the article KDIGO and aHUS treatment guidelines

KDIGO and aHUS treatment guidelines

  • Post author:Len Woodward
  • Post published:November 14, 2023
  • Post category:Featured
  • Post comments:2 Comments

KDIGO stands for Kidney Disease: Improving Global Outcomes. It is a global nonprofit organization that develops and publishes clinical practice guidelines…

Continue ReadingKDIGO and aHUS treatment guidelines
Read more about the article aHUS – Stopping eculizumab treatment safely

aHUS – Stopping eculizumab treatment safely

  • Post author:Len Woodward
  • Post published:November 1, 2023
  • Post category:News
  • Post comments:0 Comments

For aHUS patients stopping eculizumab (or even Ravulizumab) treatment is an important but emotive issue. Having had the treatment when seriously…

Continue ReadingaHUS – Stopping eculizumab treatment safely
Read more about the article Algorithms: Steps to Diagnose aHUS & other TMAs

Algorithms: Steps to Diagnose aHUS & other TMAs

  • Post author:Linda Burke
  • Post published:October 25, 2023
  • Post category:News
  • Post comments:0 Comments

Algorithms to diagnose aHUS apart from other syndromes of TMA exist, but why do these tools with problem solving steps seem under-utilized?

Continue ReadingAlgorithms: Steps to Diagnose aHUS & other TMAs
Read more about the article Closing the CaHUS knowledge gap

Closing the CaHUS knowledge gap

  • Post author:Len Woodward
  • Post published:October 21, 2023
  • Post category:News
  • Post comments:0 Comments

Two days ago an article appeared in BLOOD journal which was the result of a comprehensive analysis of data about patients…

Continue ReadingClosing the CaHUS knowledge gap
Read more about the article Immunocompromisation- is it aHUS?

Immunocompromisation- is it aHUS?

  • Post author:Len Woodward
  • Post published:October 20, 2023
  • Post category:News
  • Post comments:0 Comments

Immunocompromisation is a hall mark of aHUS. For those who are predisposed to it and for those who have had it…

Continue ReadingImmunocompromisation- is it aHUS?
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