aHUS-Interpretation is Complex
Article No. 433 9 May 2021 Each day there are tweets about aHUS on Twitter. Mostly clinicians informing clinicians about new…
aHUS Trial Watch 12 (crovalimab update)
Article No. 432 7 May 2021 In the past week or so, the possible trial of a new technology for treating…
When good Complement goes aHUS bad
Article 430 2 May 2021 OK so HUS is caused by e.coli and aHUS results from Complement dysregulation. Both are…
Direct action – aHUS research
Article No. 429 23 April 2021 The aHUS alliance reputation for its 360 degree view of the rare disease aHUS continues…
Atypical HUS & the Teen Years
Families with teenagers diagnosed with the life-threatening & rare disease atypical HUS deal with more than the usual host of everyday tangles regarding issues involving school, personal development, friendships, and activities.
UNITED KINGDOM
CTMA UK
Rare disease patients becoming rarer in the USA.
Article No. 427 15 April 2021 It is not surprising that people are confused by rare disease definitions and terms, the…
Charmed Moments
Atypical HUS families may not live ‘charmed lives’ - but those affected by this rare disease can deliberately choose to create small ‘Charmed Moments’ each day. Given the uncertainties aHUS brings to our patients and their families, a look at cultivating actions and selecting choices to react to life’s circumstances and aHUS realities.
Experiencing aHUS – Viewpoints & Variations
Article No. 425 30 March 2021 Dealing with the rare disease atypical HUS is difficult, for both patients and for those…
aHUS and COVID 19 Vaccine Update Update
Article No. 424 19 March 2021 COVID 19 vaccine supplies are being hampered around the world because of uncertainty about a…
- Go to the previous page
- 1
- …
- 32
- 33
- 34
- 35
- 36
- 37
- 38
- …
- 82
- Go to the next page