Ravulizumab costs less over a life time
Article No 394 23 November 2020 In an article on 16 October 2020 (No 388) aHUS Global Action derived a cost…
Atypical HUS & #Nephrology #SoMe
Harnessing the power of Nephrology Social Media - the aHUS Alliance looks back at KidneyWeek 2020 and its ability to inform & engage patient groups as well as medical professionals. How might Patient Experiences become better integrated to improve outreach and understanding for all stakeholders and initiatives?
Advancements in mRNA – an approach to COVID-19 Vaccines
Pfizer and BioNTech press release 9 Nov 2020 announced positive announcement for their COVID-19 vaccine candidate. In the rapidly changing pandemic landscape, the aHUS Alliance provides compiled info & resources for background on mRNA and its potential approach to prevent disease.
IPNA WebMaster for Nov 7th: Focus on HUS
Join in this 7 November 2020 IPNA endorsed webinar on HUS, number 17 in the IPNA Web Master series. Pediatricians as well as adult & pediatric nephrologists are invited to deep dive into the topic presented by Dr Sidharth Kumar Sethi - HUS: Newer Developments in Pathology & Treatment.
A tale of two aHUS diagnoses
Article No 390 1 November 2020 All aHUS patients at some point have been told they have got aHUS. It is…
The aHUS Diagnosis Process
Article No 389 27 October 2020 A process is a series of steps. Diagnosis is a process. A medical diagnosis is…
Is Ravulizumab affordable for aHUS?
Article 388 16 October 2020 aHUS patients envisage a treatment that is affordable for all one day. That will be a…
aHUS transplants simplified
Article No. 387 13 October 2020 This website has featured several articles* about the topic of aHUS Transplants and their need…
Atypical HUS & World Thrombosis Day
World Thrombosis Day is held annually on 13 October to help raise awareness of causes, dangers, and risk factors for blood clot formation. Thrombosis is the formation of potentially deadly blood clots in an artery or vein. People with the rare disease atypical HUS can experience organ damage from small vessel blood clots & need to be alert to signs of thrombosis.
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