Support for rare disease patients and their families - what does that look like, and how does it address their needs? The aHUS Alliance looks behind the medical issues of living with a rare disease to focus on the many factors involved with the struggle to live a meaningful life centered on wellness.
Article No. 367 8 August 2020 aHUS Awareness Day 2020 is less than 2 months away! The world will join together…
Article No 366 4 August 2020 An aHUS ROW (Rest of the World) update : Spotlight on aHUS Norway …
Article No. 365 3 August 2020 Please note the study is now complete and that no further contributions are being sought.…
Article No 364 2 August 2020 Genetics is very important to aHUS patients. aHUS is a very rare genetic diseases. aHUS…
aHUS Global Action last reported on the ERKNet Registry in January this year ( see article here).At that time the TMA…
Article No. 362 27 July 2020 Ask Google " how many aHUS patients are there in the USA?" and you will…
Article No. 361 24 July 2020 The world’s 6th annual aHUS Awareness Day, to be held on Thursday 24 September…
Article No 360 22 July 2020 Whilst aHUS patients increasingly wonder whether It is possible to withdraw from eculizumab/Ravulizumab treatment, many…