aHUS awareness day and aHUS alliance Global Action
Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…
aHUS Global Poll 2024- 7 days left.
There is now 7 days to go before the Global aHUS Poll is closed to further responses. This year Global aHUS…
AN aHUS PATIENT’S TREATMENT DISCONTINUATION MODEL
Without any further comment here is the model mentioned in the previous article ( which if you have not already seen…
TO STOP OR NOT TO STOP – THAT IS THE QUESTION?
You have had aHUS. The type of aHUS caused by uncontrolled complement, not the other type. You got access to a…
Life and works of Prof. Conrad von Gasser
The Life and works of Prof. Conrad von Gasser continues the series of Before aHUS Endeavours Fade. Contents Introduction Early…
A website with an all angles approach to aHUS
Some time back aHUS Global Action gave a presentation to an aHUS patient conference and included the following slide about its…
The KDIGO “aHUS” Guidelines have arrived
The long anticipated KDIGO Guidelines from the Controversies Conference held in Florence in September 2022 are now published. The report can…
An aHUS Game Changer
A new blood test for aHUS could be a game changer for those who have been diagnosed with aHUS only to…
An eculizumab biosimilar for the USA
Global Action has received this notice from the FDA. We cannot find a price or evidence from an aHUS trial as…
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