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Read more about the article Integrating a greater aHUS patient voice

Integrating a greater aHUS patient voice

  • Post author:Len Woodward
  • Post published:May 16, 2022
  • Post category:Featured
  • Post comments:0 Comments

A final question in the RDD2022 video series on how to integrate a patient voice of experience into aHUS Pharma and…

Continue ReadingIntegrating a greater aHUS patient voice
Read more about the article Difference in aHUSs

Difference in aHUSs

  • Post author:Len Woodward
  • Post published:May 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

This question about difference in disease triggers and treatments from Jeff did not feature in the RDD2022 video but was given…

Continue ReadingDifference in aHUSs
Read more about the article Future effects of aHUS and its treatment

Future effects of aHUS and its treatment

  • Post author:Len Woodward
  • Post published:May 11, 2022
  • Post category:Featured
  • Post comments:0 Comments

A number of questions in the RDD2022 video are about what will happen to patients in the future due to the…

Continue ReadingFuture effects of aHUS and its treatment
Read more about the article aHUS care pathway

aHUS care pathway

  • Post author:Len Woodward
  • Post published:May 10, 2022
  • Post category:Featured
  • Post comments:0 Comments

The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…

Continue ReadingaHUS care pathway
Read more about the article aHUS limitations

aHUS limitations

  • Post author:Len Woodward
  • Post published:May 8, 2022
  • Post category:Featured
  • Post comments:0 Comments

Zinovieva asked two related questions in the RDD 2020 video The issues of what provokes ( or triggers) the development of…

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Read more about the article aHUS Patient information and mutual support

aHUS Patient information and mutual support

  • Post author:Len Woodward
  • Post published:May 5, 2022
  • Post category:Featured
  • Post comments:2 Comments

One thing is for certain, there is much more information available about aHUS because of the internet than there was even…

Continue ReadingaHUS Patient information and mutual support
Read more about the article Can an unknown aHUS  susceptibility be passed on?

Can an unknown aHUS susceptibility be passed on?

  • Post author:Len Woodward
  • Post published:May 2, 2022
  • Post category:Featured
  • Post comments:0 Comments

Usually inheritance questions about a HUS relate to genetic susceptibility mutations/variants/markers that are known. This one is different because it is…

Continue ReadingCan an unknown aHUS susceptibility be passed on?
Read more about the article aHUS survival and social support

aHUS survival and social support

  • Post author:Len Woodward
  • Post published:April 25, 2022
  • Post category:Featured
  • Post comments:0 Comments

The RDD2022 Video question by Heitor may be one which is not specific to aHUS, . It raises issues, which are…

Continue ReadingaHUS survival and social support
Read more about the article Can aHUS relapse in pregnancy?

Can aHUS relapse in pregnancy?

  • Post author:Len Woodward
  • Post published:April 13, 2022
  • Post category:Featured
  • Post comments:0 Comments

Pregnancy is an important topic and has featured a lot on this website. Quite a few questions about it in the…

Continue ReadingCan aHUS relapse in pregnancy?
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