aHUS care pathway
The care pathway for aHUS patients has been looked at in detail in Global Action’s Diagnosis Process Study ( for reports…
aHUS limitations
Zinovieva asked two related questions in the RDD 2020 video The issues of what provokes ( or triggers) the development of…
aHUS Patient information and mutual support
One thing is for certain, there is much more information available about aHUS because of the internet than there was even…
Can an unknown aHUS susceptibility be passed on?
Usually inheritance questions about a HUS relate to genetic susceptibility mutations/variants/markers that are known. This one is different because it is…
aHUS survival and social support
The RDD2022 Video question by Heitor may be one which is not specific to aHUS, . It raises issues, which are…
Can aHUS relapse in pregnancy?
Pregnancy is an important topic and has featured a lot on this website. Quite a few questions about it in the…
Questions about aHUS triggers
It is known that certain rare genetic variants, mutations, or markers, in components of the Complement System make some people susceptible…
Incomplete aHUS penetrance in families
Although aHUS has genetic causes, in the majority of cases it is found that the patient is the only one in…
Monitoring after Eculizumab withdrawal
This article marks the 500th website news “blog” since it went live nearly six years ago. That milestone is marked by…
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