Immunocompromisation- is it aHUS?
Immunocompromisation is a hall mark of aHUS. For those who are predisposed to it and for those who have had it…
Complement inhibitor users it’s World Meningitis Day
It is important that those using complement inhibitors remain alert to meningococcal infection a life threatening side effect of their use.…
What are aHUS people capable of?
About 4000 people around the world have had aHUS since the last aHUS awareness day. Many did not survive, they were…
Just saying it’s aHUS Awareness Day 2023
Yes today 24th September 2023 is another aHUS awareness day, the 9th to date. Ever wonder who is behind this international…
Some aHUS awareness for FDA today
Something different has been tried this year to raise awareness of aHUS. It involved the Food & Drugs Administration , the…
aHUS awareness day #9 – images of past days.
It is hard to believe that it is nine years since aHUS alliance came up with the first aHUS Awareness Day…
aHUS patient websites
Currently the aHUS patient website belonging to the atypical HUS Foundation, www.aHUS.org is “ under construction” ,or being reconstructed, so it…
Micro clots in Long aHUS and COVID
It hard to believe that three years have passed since COVID consumed our lives. Although it was a respiratory disease from…
USA
GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT
Are there 3000 aHUS patients in the USA
Health care and better estimating lead us to believe there are approaching 3000 aHUS patients in the USA who have survived…