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Read more about the article A Complement Weekend

A Complement Weekend

  • Post author:Kamal Shah
  • Post published:August 19, 2024
  • Post category:Events
  • Post comments:0 Comments

An International Patient's Conference on aHUS and C3 Glomerulopathy / MPGN is being organised on the 14th and 15th of September…

Continue ReadingA Complement Weekend
Read more about the article aHUS Global Poll 2024- 7 days left.

aHUS Global Poll 2024- 7 days left.

  • Post author:Len Woodward
  • Post published:August 11, 2024
  • Post category:News
  • Post comments:0 Comments

There is now 7 days to go before the Global aHUS Poll is closed to further responses. This year Global aHUS…

Continue ReadingaHUS Global Poll 2024- 7 days left.
Read more about the article Bill and Cheryl Biermann -Before aHUS Endeavours Fade

Bill and Cheryl Biermann -Before aHUS Endeavours Fade

  • Post author:Len Woodward
  • Post published:March 25, 2024
  • Post category:Featured
  • Post comments:0 Comments

The aHUS endeavours series continue with an interview with Bill and Cheryl Biermann whose family was affected by aHUS at the…

Continue ReadingBill and Cheryl Biermann -Before aHUS Endeavours Fade
Read more about the article Learn with USTMA – aHUS Videos

Learn with USTMA – aHUS Videos

  • Post author:Linda Burke
  • Post published:December 15, 2023
  • Post category:Featured
  • Post comments:0 Comments

The United States Thrombotic Microangiopathy (USTMA) Consortium was formed in 2014 as a collaborative initiative to organize research efforts in the…

Continue ReadingLearn with USTMA – aHUS Videos
Read more about the article Immunocompromisation- is it aHUS?

Immunocompromisation- is it aHUS?

  • Post author:Len Woodward
  • Post published:October 20, 2023
  • Post category:News
  • Post comments:0 Comments

Immunocompromisation is a hall mark of aHUS. For those who are predisposed to it and for those who have had it…

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Read more about the article Global aHUS at the Baltimore Conference

Global aHUS at the Baltimore Conference

  • Post author:Len Woodward
  • Post published:April 28, 2023
  • Post category:News
  • Post comments:0 Comments

Global Action will be attending the Foundation’s Baltimore aHUS patients conference from the 28th to the 30th April. Here you will…

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Read more about the article The ethics of aHUS patient involvement.

The ethics of aHUS patient involvement.

  • Post author:Len Woodward
  • Post published:April 16, 2023
  • Post category:Featured/News
  • Post comments:0 Comments

Over the past 10 years the movement of involvement of patients in the development of medicines, their regulation and use has…

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Read more about the article aHUS Community Advisory Board News

aHUS Community Advisory Board News

  • Post author:Len Woodward
  • Post published:February 28, 2023
  • Post category:News
  • Post comments:0 Comments

Two updates on the Global aHUS Community Advisory Board. There is some information about the inaugural set of CAB / PHARMA…

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Read more about the article aHUS Global Action – Meet Trustee K Grey

aHUS Global Action – Meet Trustee K Grey

  • Post author:Linda Burke
  • Post published:January 28, 2023
  • Post category:Featured
  • Post comments:1 Comment

As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…

Continue ReadingaHUS Global Action – Meet Trustee K Grey
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