Mastermind on aHUS
Imagine atypical haemolytic uraemic syndrome or aHUS on a well know quiz show, say Mastermind. How would it look?--- The Mastermind…
Imagine atypical haemolytic uraemic syndrome or aHUS on a well know quiz show, say Mastermind. How would it look?--- The Mastermind…
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it…
On the 10th anniversary of international aHUS awareness day it is timely to raise awareness that the old term aHUS is…
Introduction Atypical Hemolytic Uremic Syndrome (aHUS) is a rare, life-threatening disease that remains largely unfamiliar to the general public and even…
The theme for aHUS Awareness Day 2024 is 'Mental Health'
Some time back aHUS Global Action gave a presentation to an aHUS patient conference and included the following slide about its…
Below is a “framework of ambitions” for those with rare diseases which appeared on Rare Disease Day 2024 (see link below…