Discriminatory rare disease reach on social media platforms
Is social media reach to aHUS patients and families hindered because of our disease’s rareness? Rare disease patients are so few…
Raising Global aHUS Awareness Everywhere
Raising aHUS awareness is built into the DNA of the aHUS alliance and has been from its outset and also for…
More countries becoming neighbours in Global aHUS Town
Hiding in plain sight were neighbours Republic of Ireland and Iceland. The south of Ireland is well known as the place…
aHUS Awareness Day
2025 aHUS Awareness Day Project - Watch it at this Link https://bit.ly/2025aHUS24Sept aHUS AWARENESS DAY 24 September – an annual day…
2025 aHUS Awareness Day
Join the global effort to raise awareness of atypical HUS! Since 2015, the aHUS Alliance Global Action team has led an…
Mastermind on aHUS
Imagine atypical haemolytic uraemic syndrome or aHUS on a well know quiz show, say Mastermind. How would it look?--- The Mastermind…
FDA has a record about aHUS
In 2023 a group from the aHUS community met with the FDA to talk to them about living with aHUS and…
Is a patient organisation still needed for aHUS?
As another year turns in the aHUS world it is perhaps a time to reflect once more on the mission of…
Mental health aHUS Day video- insights
The video for aHUS awareness day 2024 was about mental health and having aHUS. Global Action has looked again at it…
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