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Read more about the article Topics in aHUS Research – Sept 2022

Topics in aHUS Research – Sept 2022

  • Post author:Linda Burke
  • Post published:September 7, 2022
  • Post category:Featured
  • Post comments:0 Comments

Atypical HUS patients and family caregivers are direct consumers of medical information and research, as we have a vested interest in…

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Read more about the article Atypical HUS Research: What’s New OCT 2021

Atypical HUS Research: What’s New OCT 2021

  • Post author:ahusalliance
  • Post published:October 28, 2021
  • Post category:News
  • Post comments:0 Comments

We marked aHUS Awareness Day (24 Sept) with our own advocacy-based research, releasing the 1st report of data and insights from…

Continue ReadingAtypical HUS Research: What’s New OCT 2021
Read more about the article What became of the aHUS 130?

What became of the aHUS 130?

  • Post author:ahusalliance
  • Post published:July 14, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

Article No. 446 14 July 2021 Eculizumab effectiveness and safety in the treatment of aHUS was established in five clinical trials…

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Read more about the article Update: aHUS Diagnosis Process Study

Update: aHUS Diagnosis Process Study

  • Post author:ahusalliance
  • Post published:March 1, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 421 1 March 2021 There is no doubt that with the response by the aHUS Patient community to the…

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Read more about the article Whistle-stop Tour Begins

Whistle-stop Tour Begins

  • Post author:ahusalliance
  • Post published:July 14, 2018
  • Post category:Uncategorized
  • Post comments:0 Comments

Paris FR - Whistle-Stop Tour of 4 aHUS Centers in the EU: Visits to Three Nations in 6 days. The aHUS Alliance toured centers of aHUS expertise and research in July 2018. 1st Stop: the Complement Diagnostics Laboratory led by Dr Veronique Fremeaux- Bacchi (HEGP).

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Read more about the article aHUS and TMA Study Centers

aHUS and TMA Study Centers

  • Post author:ahusalliance
  • Post published:April 15, 2018
  • Post category:Featured
  • Post comments:0 Comments

    aHUS and TMA Study Centers An International List Compiled by the aHUS Alliance     Atypical HUS is difficult…

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Read more about the article Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

Atypical HUS Facts – 2017 aHUS Alliance Fact Sheets

  • Post author:ahusalliance
  • Post published:October 9, 2017
  • Post category:Featured
  • Post comments:0 Comments

  Looking for the latest 2017 facts and key research about the rare disease atypical hemolytic uremic syndrome (aHUS)?  You’ve found…

Continue ReadingAtypical HUS Facts – 2017 aHUS Alliance Fact Sheets

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