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Read more about the article Advocacy punching  above its aHUS weight

Advocacy punching above its aHUS weight

  • Post author:Len Woodward
  • Post published:January 16, 2022
  • Post category:News
  • Post comments:0 Comments

There is so much chat these days about what things should be like after the pandemic. Though it does seem at…

Continue ReadingAdvocacy punching above its aHUS weight
Read more about the article COVID and aHUS at the end of 2021

COVID and aHUS at the end of 2021

  • Post author:Len Woodward
  • Post published:December 31, 2021
  • Post category:News
  • Post comments:0 Comments

As the year ends we are still living with COVID. It seems like it is never ending. And it is and…

Continue ReadingCOVID and aHUS at the end of 2021
Read more about the article aHUS Diagnosis Process – Report 2

aHUS Diagnosis Process – Report 2

  • Post author:Len Woodward
  • Post published:December 18, 2021
  • Post category:Featured
  • Post comments:0 Comments

The second article in the series about the aHUS Diagnosis Process has been published on the website today. Research made possible…

Continue ReadingaHUS Diagnosis Process – Report 2
Read more about the article aHUS Trial Watch 14

aHUS Trial Watch 14

  • Post author:Len Woodward
  • Post published:November 27, 2021
  • Post category:News
  • Post comments:0 Comments

A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…

Continue ReadingaHUS Trial Watch 14
Read more about the article One genetic problem but two diseases

One genetic problem but two diseases

  • Post author:Len Woodward
  • Post published:November 18, 2021
  • Post category:News
  • Post comments:0 Comments

Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek alphabet " ε" and you have…

Continue ReadingOne genetic problem but two diseases
Read more about the article Living with aHUS- what would you say?

Living with aHUS- what would you say?

  • Post author:Len Woodward
  • Post published:October 29, 2021
  • Post category:Featured
  • Post comments:0 Comments

If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…

Continue ReadingLiving with aHUS- what would you say?
Read more about the article Good complement goes aHUS bad

Good complement goes aHUS bad

  • Post author:ahusalliance
  • Post published:October 20, 2021
  • Post category:Featured
  • Post comments:0 Comments

  OK, so HUS is caused by e.coli toxins and aHUS results from Complement dysregulation. Both are thrombotic microangiopathies. HUS is…

Continue ReadingGood complement goes aHUS bad
Read more about the article Ravulizumab -Superwoman juice?

Ravulizumab -Superwoman juice?

  • Post author:Len Woodward
  • Post published:October 18, 2021
  • Post category:News
  • Post comments:0 Comments

The portrayal of rare diseases in the media can be both positive and detrimental. It can be sensational and political. It…

Continue ReadingRavulizumab -Superwoman juice?
Read more about the article Bergamo aHUS symposium gets the go ahead

Bergamo aHUS symposium gets the go ahead

  • Post author:Len Woodward
  • Post published:October 12, 2021
  • Post category:News
  • Post comments:0 Comments

In the weeks leading up to aHUS awareness day an announcement was made which did not get the attention it perhaps…

Continue ReadingBergamo aHUS symposium gets the go ahead
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