Can aHUS treatment be affordable for all?
A very important topic for many aHUS patients around the world with an unmet need. Patients have included the topic in…
COVID TRIGGERS aHUS
It was March 2020 and COVID appears on www.ahusallianceaction.org for first time with a question: Can the coronavirus trigger an infection…
YOU’VE GOT aHUS!
The third article in the series about the aHUS Diagnosis Process is published today. Rare Disease Day 2022 The article covers…
LONG aHUS
aHUS alliance Global Action has previously brought up the concept of "Long aHUS " in its articles during the COVID pandemic.…
aHUS are we there yet?
Last summer, aHUS alliance’s Twitter Account featured the plight of a patient who, after a week in hospital, had been found…
Advocacy punching above its aHUS weight
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
COVID and aHUS at the end of 2021
As the year ends we are still living with COVID. It seems like it is never ending. And it is and…
aHUS Diagnosis Process – Report 2
The second article in the series about the aHUS Diagnosis Process has been published on the website today. Research made possible…
aHUS Trial Watch 14
A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…
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