Advocacy punching above its aHUS weight
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
There is so much chat these days about what things should be like after the pandemic. Though it does seem at…
As the year ends we are still living with COVID. It seems like it is never ending. And it is and…
The second article in the series about the aHUS Diagnosis Process has been published on the website today. Research made possible…
A trial has been designed by Alexion to examine the efficacy of Ravulizumab to treat those with a Thrombotic Microngiopathy ,…
Take "diacylglycerol kinase " and add a "syndrome" throw in a letter from the Greek alphabet " ε" and you have…
If asked by health policy decision makers, and with a 500 words limit, how would you answer the question "how does…
OK, so HUS is caused by e.coli toxins and aHUS results from Complement dysregulation. Both are thrombotic microangiopathies. HUS is…
The portrayal of rare diseases in the media can be both positive and detrimental. It can be sensational and political. It…
In the weeks leading up to aHUS awareness day an announcement was made which did not get the attention it perhaps…