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Read more about the article Ravulizumab is not quite eculizumab

Ravulizumab is not quite eculizumab

  • Post author:Len Woodward
  • Post published:October 11, 2021
  • Post category:Featured
  • Post comments:0 Comments

Ravulizumab is becoming a treatment of choice for aHUS in countries where access is funded. Though eculizumab will still have a…

Continue ReadingRavulizumab is not quite eculizumab
Read more about the article Ecu to ravu transfer UPDATE

Ecu to ravu transfer UPDATE

  • Post author:Len Woodward
  • Post published:October 6, 2021
  • Post category:News
  • Post comments:0 Comments

Update news on switching process. aHUS alliance Global Action were not aware of a prior step in the switching process to…

Continue ReadingEcu to ravu transfer UPDATE
Read more about the article Call to action USA aHUS Patients

Call to action USA aHUS Patients

  • Post author:Len Woodward
  • Post published:October 5, 2021
  • Post category:Featured
  • Post comments:0 Comments

In Article 462 notice was given of a study to help USA rare disease patients in general. and aHUS patients in…

Continue ReadingCall to action USA aHUS Patients
Read more about the article USA aHUS – treatment costs study

USA aHUS – treatment costs study

  • Post author:Len Woodward
  • Post published:October 4, 2021
  • Post category:News
  • Post comments:0 Comments

Access to treatment for aHUS is a global issue. Many patients find themselves in countries where their health providers will not…

Continue ReadingUSA aHUS – treatment costs study
Read more about the article Pregnancy and aHUS

Pregnancy and aHUS

  • Post author:Len Woodward
  • Post published:October 1, 2021
  • Post category:News
  • Post comments:0 Comments

The topic of pregnancy and aHUS is included in the Global aHUS Patients’ Research Agenda. It has featured in articles on…

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Read more about the article aHUS Patient Registries Iran & ERKNet

aHUS Patient Registries Iran & ERKNet

  • Post author:Len Woodward
  • Post published:September 29, 2021
  • Post category:News
  • Post comments:0 Comments

There have been several articles about aHUS Patient Registries on this website over the years. Patient Registries are an important part…

Continue ReadingaHUS Patient Registries Iran & ERKNet
Read more about the article aHUS Diagnosis Process-First Report

aHUS Diagnosis Process-First Report

  • Post author:Len Woodward
  • Post published:September 24, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

The first report on what 227 aHUS patients from around the world told us about their aHUS diagnosis experience and their…

Continue ReadingaHUS Diagnosis Process-First Report
Read more about the article 2021 FAQs – FACTS about Atypical HUS

2021 FAQs – FACTS about Atypical HUS

  • Post author:Linda Burke
  • Post published:September 19, 2021
  • Post category:Uncategorized
  • Post comments:0 Comments

aHUS Awareness Day 2021 - Answers to FAQs Finding information about any rare disease is challenging, and perhaps more so for…

Continue Reading2021 FAQs – FACTS about Atypical HUS
Read more about the article Withdrawal – need for a consensus

Withdrawal – need for a consensus

  • Post author:ahusalliance
  • Post published:September 8, 2021
  • Post category:Featured
  • Post comments:0 Comments

Article No. 457 Yet another article about the outcome of withdrawal of eculizumab treatment has appeared. It is not about a…

Continue ReadingWithdrawal – need for a consensus
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