The aHUS diagnosis challenge
Article No. 374 3 September 2020 For most aHUS patients a diagnosis of aHUS was hard to come by. For a…
Like an Agatha Christie Story!
Article No. 370 13 August 2020 Early this year, soon after it had completed its Rare Disease Day activities and COVID…
aHUS:Time is a great healer
Article No.356 17 July 2020 Two recent website articles delved into the data provided in an article by the Alexion aHUS…
aHUS health, well-being and work
Article No. 355 13 July 2020 Among the the topics included in the Global aHUS Patients' Research Agenda are the following…
Voicing a Global aHUS Vision
Прекрасным будет тот день, когда наше осознание серьёзности заболевания аГУС/кТМА* поможет добиться того, что пациенты во всем мире смогут позволить себе…
What about aHUS?
Article No. 348 10 June 2020 A few weeks ago saw an anniversary of the launch of this website. Not a…
aHUS is….
Article No. 345 20 May 2020 COVID 19 lockdown does seem to give more time to think about things, so the…
They “get it ” when they can get it.
Article No. 332 14 March 2020 At the present incidence levels reported worldwide, Coronavirus 2019 (COVID-19) still fits definition of a…
Eculizumab- safe or not?
aHUS patients and carers raised the research topic : "Can the side effects of treatment using a complement inhibitor be distinguished…
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