aHUS Alliance Global Action – Partners in Advocacy
How Global aHUS Advocacy Strengthens Support for Patients, Families, and the Medical Community in Nations around the World Around the world,…
Atypical HUS in Brazil
Atypical HUS in Brazil - an interview with Pamela Notario of SHUa Brasil. (aHUS around the World: an aHUS Alliance Global Action series)
TURKEY: Association of the Fight against PNH and aHUS Diseases
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
Baltimore -aHUS First Since COVID
Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…
A call for interest in joining the aHUS CAB
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
aHUS Global Action – Meet Trustee K Grey
As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…