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Read more about the article TURKEY: Association of the Fight against PNH and aHUS Diseases

TURKEY: Association of the Fight against PNH and aHUS Diseases

  • Post author:Linda Burke
  • Post published:March 27, 2023
  • Post category:Featured
  • Post comments:0 Comments

We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği.  …

Continue ReadingTURKEY: Association of the Fight against PNH and aHUS Diseases
Read more about the article Baltimore -aHUS First Since COVID

Baltimore -aHUS First Since COVID

  • Post author:Len Woodward
  • Post published:March 17, 2023
  • Post category:News
  • Post comments:0 Comments

Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…

Continue ReadingBaltimore -aHUS First Since COVID
Read more about the article A call for interest in joining the aHUS CAB

A call for interest in joining the aHUS CAB

  • Post author:Len Woodward
  • Post published:February 6, 2023
  • Post category:News
  • Post comments:0 Comments

This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…

Continue ReadingA call for interest in joining the aHUS CAB
Read more about the article aHUS Global Action – Meet Trustee K Grey

aHUS Global Action – Meet Trustee K Grey

  • Post author:Linda Burke
  • Post published:January 28, 2023
  • Post category:Featured
  • Post comments:1 Comment

As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…

Continue ReadingaHUS Global Action – Meet Trustee K Grey

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