TURKEY: Association of the Fight against PNH and aHUS Diseases
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…