TURKEY: Association of the Fight against PNH and aHUS Diseases
We’re pleased to feature the outstanding work of the Turkish PNH & aHUS advocacy group PNH VE AHÜS İLE MÜCADELE Derneği. …
Baltimore -aHUS First Since COVID
Zoom has helped with keeping aHUS advocacy going during the restrictions resulting from the COVID pandemic. Starting a zoom meeting always…
A call for interest in joining the aHUS CAB
This time last year a couple of dozen people with an interest in global aHUS advocacy were discussing and deciding on…
aHUS Global Action – Meet Trustee K Grey
As advocates for the rare disease atypical haemolytic uraemic syndrome (atypical HUS), there’s only one group of patients and caregivers whose…